Manic Monday

[cagoldi]

Sept 23, 2019 14:40:51 GMT -6 lahdeedah said:

Sept 23, 2019 13:28:01 GMT -6 cagoldi said:

I love that Apieu sunscreen. Good stuff.

Do you still use the cosrx hyaluronic acid stuff? I saw you raved about it last fall. Just wondering. Also the cosrx galactomyces? I think you mentioned these, too? I may be wrong. I read so much today.

I don’t use the CosRX hyaluronic right now, but it is very good.

I like that as a nighttime moisturizer.

Galactomyces is a really nice product, it definitely gave me that coveted glow. I cut it because I feel that my current Vitamin C Plus is yielding all the same benefits so I just streamlined as much as I could.

[lahdeedah]

Sept 23, 2019 14:52:32 GMT -6 cagoldi said:

Sept 23, 2019 14:40:51 GMT -6 lahdeedah said:

Do you still use the cosrx hyaluronic acid stuff? I saw you raved about it last fall. Just wondering. Also the cosrx galactomyces? I think you mentioned these, too? I may be wrong. I read so much today.

I don’t use the CosRX hyaluronic right now, but it is very good.

I like that as a nighttime moisturizer.

Galactomyces is a really nice product, it definitely gave me that coveted glow. I cut it because I feel that my current Vitamin C Plus is yielding all the same benefits so I just streamlined as much as I could.

Ok thanks!

[trtlcrzy]

Uh oh guys. H says she has a boyfriend at school but she’s never actually talked to him so I think it’s just a crush at this point. He’s in one of the other K classes so she only sees him at recess. My friend texted me that her daughter said H wouldn’t play tag with them because she wanted to “keep an eye on her boyfriend”. I told her she needs to play with her friends. I kind of want to creep when they are at recess to see what goes on but I’m not sure what time it is.

[cagoldi]

Sept 23, 2019 13:50:58 GMT -6 wineallthetime said:

cagoldi, what was the testing like when X went through the autism testing? Looks like we are headed in that direction with A, though I really don't think he's on the spectrum. I don't have a ton of knowledge in it though so who knows.

It was a pretty long process but getting it confirmed around 30 months of age made him very young at the time of diagnosis.

So, keep in mind that a lot of what we deal with has to do with him being multiply disabled because of the DCD.

Here’s a timeline as well as I can remember it:

Around 12 months, I noticed he was not moving to an age appropriate diet. Pedi said we would discuss again at 15 months. No progress had been made so she referred us for feeding therapy. Getting that set up took a few months. We now know that even though kids on the spectrum do struggle with eating mostly due to sensory issues, his problems are primarily related to lack of coordination and weakness in his jaw, tongue, and mouth. (The same is true of his speech delay)
- During therapy the OT noticed behaviors characteristic of ASD kiddos, so started documenting those (sensory seeking, atypical play, oral defensive, hates light touch, some lack of joint attention, etc).
- Therapist recommended neurodevelopmental testing (it took several months to get this appointment, and the packet of work I had to complete before they would schedule was probably 200 pages).
- Meeting with neurodevelopmental pedi and he did various evaluations. Much of it involves ruling out any physical issues (hearing and sight deficits, etc). At the end of the visit he says he’s positive he has DCD, not sure about ASD.
- they scheduled the testing, this also took a few months. The test itself mostly consisted of the examiner playing with him and observing how he plays.
- a couple weeks after the test, our neurodevelopmental pedi saw us to give the Diagnosis and discuss next steps.

If you want any unsolicited advice, I will tell you that your comfort level (and that of A’s) is going to be critical. We had to flat out refuse to work with certain groups and people because they just couldn’t get him to demonstrate his normal behaviors, and if that’s the case they aren’t getting a true picture of his strengths or delays. So, if at any point you think something was not a clear representation, I would be very vocal about that.

[wedding]

chrisy01 I haven’t read yet but I hear you on the end of FY. My office is stacks of purchasing docs and spreadsheets right now. We also were told last week that we need to have everything done by COB Thursday. I’m in good shape but still fainted a little. They later revised to COB Friday. 😒

[wedding]

Sept 23, 2019 8:04:20 GMT -6 lfig said:

Morning! I’ve been spiraling on funding sources to help pay for S’s communication device. Just found out that insurance will only pay $1200 and it costs $4000. So I’ve been calling multiple agencies in the area that allegedly help with that kind of thing for kids with developmental disabilities. We make too much money for some of the programs that are income dependent. But there are others that are based on the need of the child and not income. Hopefully someone has a soft heart for us. Lol.

It’s instances like this that warrant Go Fund Me. I would definitely donate. I know it’s hard to do something like that but really people want to help.

[wedding]

Happy belated jewels!

[wedding]

I missed why you are leaving the sitter peachsmama but if M doesn’t want to go then I am glad you are!

[klong11]

So I took Cadence to CFA for lunch and she was telling me how she doesn't have friends at school. She says she normally just swings or walks around by herself. I asked her if she's tried making friends and the kids tell her they already have friends and don't play with her. I was very surprised to hear that because she's always been really good at making friends since she is so outgoing.
I guess I'll bring it up at the parent conference in 2 weeks.

Now at dance and I'm shocked to see all these 6 year olds with bare midriffs. Like wtf? And they kept pulling their shirts up higher and higher. Cadence was like the only one who left her shirt alone. Girls, you're 6, you've got plenty of time for all that.

[peachsmama]

Sept 23, 2019 15:34:52 GMT -6 wedding said:

Sept 23, 2019 8:04:20 GMT -6 lfig said:

Morning! I’ve been spiraling on funding sources to help pay for S’s communication device. Just found out that insurance will only pay $1200 and it costs $4000. So I’ve been calling multiple agencies in the area that allegedly help with that kind of thing for kids with developmental disabilities. We make too much money for some of the programs that are income dependent. But there are others that are based on the need of the child and not income. Hopefully someone has a soft heart for us. Lol.

It’s instances like this that warrant Go Fund Me. I would definitely donate. I know it’s hard to do something like that but really people want to help.

+1!

[peachsmama]

Sept 23, 2019 15:40:56 GMT -6 wedding said:

I missed why you are leaving the sitter peachsmama but if M doesn’t want to go then I am glad you are!

I don't think I ever really said. I've been unhappy with her for a while, but the boys have gotten really unhappy the summer. I was starting to feel like she didn't like my kids anymore. She never had anything positive to say and especially poor Jackson, she always had awful things to say about him. Then she started making comments about my parentong and about what I was feeding the boys because apparently they are hyper because of what I feed them.. She made a comment about Jackson being full of vinegar and that pretty much pushed me over the edge. He had been in her house for about 30 seconds and she already decided that he was awful and they were gonna have a bed day.. And I know Jackson is a difficult child, but he doesn't deserve to have every day started with that kind of mindset. And it's been a solid month of that every morning. I kept waiting for it to a pass and hoping it would pass. For her opinion of me and my kids has shifted and it's not passing.

[lfig]

Sept 23, 2019 15:34:52 GMT -6 wedding said:

Sept 23, 2019 8:04:20 GMT -6 lfig said:

Morning! I’ve been spiraling on funding sources to help pay for S’s communication device. Just found out that insurance will only pay $1200 and it costs $4000. So I’ve been calling multiple agencies in the area that allegedly help with that kind of thing for kids with developmental disabilities. We make too much money for some of the programs that are income dependent. But there are others that are based on the need of the child and not income. Hopefully someone has a soft heart for us. Lol.

It’s instances like this that warrant Go Fund Me. I would definitely donate. I know it’s hard to do something like that but really people want to help.

I made several good contacts today with some organizations. I’m hopeful that something will come through. DNW to have to put it on a credit card!

[jewels]

Sept 23, 2019 15:34:52 GMT -6 wedding said:

Sept 23, 2019 8:04:20 GMT -6 lfig said:

Morning! I’ve been spiraling on funding sources to help pay for S’s communication device. Just found out that insurance will only pay $1200 and it costs $4000. So I’ve been calling multiple agencies in the area that allegedly help with that kind of thing for kids with developmental disabilities. We make too much money for some of the programs that are income dependent. But there are others that are based on the need of the child and not income. Hopefully someone has a soft heart for us. Lol.

It’s instances like this that warrant Go Fund Me. I would definitely donate. I know it’s hard to do something like that but really people want to help.

+1

[lfig]

Did I tell you guys that they started using a wheelchair some with S at school? I had mixed feelings at first, mainly because she is capable of walking and I was afraid she would use it as a crutch and not want to walk. but we have seen great things since they started. Her balance is greatly affected because of her issues, so just walking down the hall takes a lot of effort. So by using the wheelchair, she’s not so worn out, she’s able to focus better, she’s observing her surroundings better. In the classroom they have her strapped in it at her desk and she’s actually settled and focused better, able to attend to tasks better. It’s been a 180! They are monitoring it closely to make sure they don’t over use it, and making sure to also work with her on walking between classes, etc.

Her IEP meeting lasted 2 hours the other day but it was super productive and overall I am thrilled with they way things are going.

[tallb]

lfig that's awesome that she is doing better with the extra energy saved from not walking. Whatever works best for her! I hope an organization comes through.

klong11 oof, that's hard to hear💔 I'd def chat to the teacher and see if she has any match making skills or the before/aftercare to see if they have noticed it as well and have any ideas to help.

[mwhip]

klong11 evie says similar things. Recess is one of her least favorite parts of her day. I told her she needs to keep trying to play with some of the kids in her class. That's how you make friends. It is heartbreaking to hear, because you know how sweet she is and that other kids should love her as much as you do.

[wineallthetime]

cagoldi, wow that's intense! Thanks so much for all the great info, so helpful! I'll be bugging you more if we get to the point of testing and such. I'm wondering if by the time the appointment rolls around he won't need it anymore but time will tell!

[wineallthetime]

That's so hard @klongoria and mwhip. Do they have kids who they went to school with last year or kids who live in your neighborhood or anything?

[tgrimes]

Sept 23, 2019 15:44:22 GMT -6 klong11 said:

So I took Cadence to CFA for lunch and she was telling me how she doesn't have friends at school. She says she normally just swings or walks around by herself. I asked her if she's tried making friends and the kids tell her they already have friends and don't play with her. I was very surprised to hear that because she's always been really good at making friends since she is so outgoing.
I guess I'll bring it up at the parent conference in 2 weeks.

Now at dance and I'm shocked to see all these 6 year olds with bare midriffs. Like wtf? And they kept pulling their shirts up higher and higher. Cadence was like the only one who left her shirt alone. Girls, you're 6, you've got plenty of time for all that.

What? I can’t believe the teacher allowed that!

[mwhip]

Sept 23, 2019 17:32:57 GMT -6 wineallthetime said:

That's so hard @klongoria and mwhip. Do they have kids who they went to school with last year or kids who live in your neighborhood or anything?

Evie has a few kids she knows but none in her homeroom class. She sees them at recess but says they're all playing with other kids. So I remind her they met those other kids by saying hi and introducing themselves.

[klong11]

tgrimes every week I feel like both the shirts and shorts are getting shorter. I get that it's hip hop, but they are too young imo.

[klong11]

Sept 23, 2019 17:41:42 GMT -6 mwhip said:

Sept 23, 2019 17:32:57 GMT -6 wineallthetime said:

That's so hard @klongoria and mwhip. Do they have kids who they went to school with last year or kids who live in your neighborhood or anything?

Evie has a few kids she knows but none in her homeroom class. She sees them at recess but says they're all playing with other kids. So I remind her they met those other kids by saying hi and introducing themselves.

Cadence has no problem going up to new kids, but I guess they aren't responding well to it. She has a few friends, but in after care they are not in the same group so they don't get to play together. I did point out that there is a girl from her class in gs with her now and that girl seemed excited to see her at the meeting, so maybe they can be friends.

[guster]

@klongoria and mwhip, I’m sorry. I’m sure it’s hard to hear that.
lfig, I’m so happy to hear S doing well!

[lahdeedah]

Sept 23, 2019 16:46:22 GMT -6 lfig said:

Did I tell you guys that they started using a wheelchair some with S at school? I had mixed feelings at first, mainly because she is capable of walking and I was afraid she would use it as a crutch and not want to walk. but we have seen great things since they started. Her balance is greatly affected because of her issues, so just walking down the hall takes a lot of effort. So by using the wheelchair, she’s not so worn out, she’s able to focus better, she’s observing her surroundings better. In the classroom they have her strapped in it at her desk and she’s actually settled and focused better, able to attend to tasks better. It’s been a 180! They are monitoring it closely to make sure they don’t over use it, and making sure to also work with her on walking between classes, etc.

Her IEP meeting lasted 2 hours the other day but it was super productive and overall I am thrilled with they way things are going.

This is such good progress! Go S! Im so happy she has a school and caregivers that helps her thrive! Amazing.

[flamingo]

Sounds like a nice birthday weekend jewels , happy belated!
 
What a great update lfig! Happy to hear S is doing so well with the IEP, wheelchair, etc.

klong11 Some of the dance/cheer costumes I see on friends' kids on FB have me side-eying a bit. I only did ballet and tap but our costumes were always age-appropriate and modest. I realize I am an old fogey but sheesh, let them be little. As you said, there is plenty of time for all that.

[lahdeedah]

I’m sorry. klong11 and mwhip That is heartbreaking to hear the kids say that. It’s still early on in the school year. Hopefully they can start building relationships with some other kids to make friends.

M says he doesn’t have any friends at Aftercare. His aftercare is one exit up from our exit, and the kids that live in that area go to a different school. Also, he only goes twice a week, so the kids that see each other every day probably are better acquainted. Once I have the chance to talk to some other parents and find out if there are others that go to different after care providers, I may switch him.

[guster]

Never mind! As soon as I wrote my post I figured out my own answer.

[cagoldi]

wineallthetime happy to help any way I can. It’s quite the process. I didn’t feel like it was that bad waiting for the testing because my concerns about everything other than eating were pretty mild. It would have been a different story if he were completely non verbal or had some self-injury going on. Good luck!

That would be sad to hear, mwhip and @klongoria. I hope they feel more comfortable as everyone has time to get to know one another.

[cagoldi]

Rough night.

Miss P is a snotty, teething mess and refuses to be put down at all. This gets X on edge and makes him cry and want to be carried. Dude was a trooper but I felt badly that he had to try to do homework in the midst of such a noisy, chaotic scene.

Am I completely failing as a parent, or is my expectation/hope that everyone sits still for five minutes during a meal just unreasonable at this point?

[wedding]

Sept 23, 2019 20:26:36 GMT -6 cagoldi said:

Rough night.

Miss P is a snotty, teething mess and refuses to be put down at all. This gets X on edge and makes him cry and want to be carried. Dude was a trooper but I felt badly that he had to try to do homework in the midst of such a noisy, chaotic scene.

Am I completely failing as a parent, or is my expectation/hope that everyone sits still for five minutes during a meal just unreasonable at this point?

I would say it’s kid dependent. Could C sit for 5mins at Xs age? Nope. Sometimes he can’t now. Throw a toddler in the mix and who knows. Try to be kind to yourself. You are a great mom. Maybe loosen expectations a little bit when you can just to take the pressure off of yourself.

Meals are one of my mom guilt things that I’m really trying to let go of. While I would love for a nice family meal, it just isn’t in the cards for us right now. And honestly, the good memories I have from childhood don’t include meals. Except when the dog stole the roast from the table. That was pretty funny!