tgrimes
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Post by tgrimes on Jan 23, 2019 14:36:14 GMT -6
That sucks joelies ! Did you get a walking boot or do you get to use a knee scooter? I'm really upset I opted out of the knee scooter with my achilles. Missed opportunity for sure. |
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joelies
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Post by joelies on Jan 23, 2019 14:37:40 GMT -6
It's fractured. I think I'm in shock, I really didn't see that coming. Shit! Is it in your foot or your ankle? Ankle. No major displacement at least. They want to check it out in another week to rule out surgery but right now they don't think it'll be necessary. I'm taking any good news I can get right now, so I'm thankful for that, |
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tgrimes
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Post by tgrimes on Jan 23, 2019 14:40:34 GMT -6
Shit! Is it in your foot or your ankle? Ankle. No major displacement at least. They want to check it out in another week to rule out surgery but right now they don't think it'll be necessary. I'm taking any good news I can get right now, so I'm thankful for that, I'm so sorry. |
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joelies
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Post by joelies on Jan 23, 2019 14:41:25 GMT -6
That sucks joelies ! Did you get a walking boot or do you get to use a knee scooter? Walking boot and crutches for 6 weeks. He said by 2 months I should be able to walk unassisted, and I could be running by 3-4 months. Even if I heal freakishly quickly, Boston is out for this year. But it doesn't impact our gtg at least! |
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slenle
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Post by slenle on Jan 23, 2019 14:45:55 GMT -6
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wedding
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Post by wedding on Jan 23, 2019 14:51:29 GMT -6
joelies, oh no! Are you in a ton of pain?
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Post by dapostrophe on Jan 23, 2019 14:53:02 GMT -6
@joelues Oh no, what a disappointment...Boston that is. Glad you can still hobble around at the GTG 😉
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kim22
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Post by kim22 on Jan 23, 2019 14:55:12 GMT -6
joelies I’m so sorry. How frustrating when you work so hard.
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joelies
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Post by joelies on Jan 23, 2019 15:11:02 GMT -6
joelies , oh no! Are you in a ton of pain? As long as I don't put weight on it, it isn't too bad. It's pretty awful when I lose my balance though, so I'm trying not to do that. But yeah, I think I've already demonstrated how truly impressive my coordination is, LOL. |
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kim22
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Post by kim22 on Jan 23, 2019 15:13:51 GMT -6
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guster
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Post by guster on Jan 23, 2019 15:14:56 GMT -6
Oh no, joelies! That sucks. Can you drive? |
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cagoldi
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Post by cagoldi on Jan 23, 2019 15:24:45 GMT -6
X has been checking on Miss P in the baby room.  |
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cagoldi
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Post by cagoldi on Jan 23, 2019 15:26:16 GMT -6
Oh man, joelies. Are you okay? That really stinks Boston is off the table now. |
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joelies
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Post by joelies on Jan 23, 2019 15:29:18 GMT -6
kim22 and guster, it's my left foot so at least I can drive. I HATE relying on DH to bring me things and do everything, so I'm taking heart in at least being able to drive around when necessary.
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tgrimes
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Post by tgrimes on Jan 23, 2019 15:44:07 GMT -6
kim22 and guster , it's my left foot so at least I can drive. I HATE relying on DH to bring me things and do everything, so I'm taking heart in at least being able to drive around when necessary. <iframe width="36.07999999999993" height="2.9200000000000017" style="position: absolute; width: 36.07999999999993px; height: 2.9200000000000017px; z-index: -9999; border-style: none;left: 15px; top: -5px;" id="MoatPxIOPT0_17045490" scrolling="no"></iframe> <iframe width="36.07999999999993" height="2.9200000000000017" style="position: absolute; width: 36.08px; height: 2.92px; z-index: -9999; border-style: none; left: 1731px; top: -5px;" id="MoatPxIOPT0_47148913" scrolling="no"></iframe> <iframe width="36.07999999999993" height="2.9200000000000017" style="position: absolute; width: 36.08px; height: 2.92px; z-index: -9999; border-style: none; left: 15px; top: 87px;" id="MoatPxIOPT0_44828714" scrolling="no"></iframe> <iframe width="36.07999999999993" height="2.9200000000000017" style="position: absolute; width: 36.08px; height: 2.92px; z-index: -9999; border-style: none; left: 1731px; top: 87px;" id="MoatPxIOPT0_53374081" scrolling="no"></iframe> I'm glad it's your left. My achilles was my right so I had to learn to drive with my left. it was about 5 months before I could use my right foot. Not delightful. |
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Post by peachsmama on Jan 23, 2019 15:50:32 GMT -6
Shit! Is it in your foot or your ankle? Ankle. No major displacement at least. They want to check it out in another week to rule out surgery but right now they don't think it'll be necessary. I'm taking any good news I can get right now, so I'm thankful for that, I'm so sorry! |
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tgrimes
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Post by tgrimes on Jan 23, 2019 16:03:15 GMT -6
cagoldi Here is the response I received from the immunologist. Thoughts? Respecting the ENT very much, the immunoglobulins are not low for Hayden's age. They are within age related norms. Also, we have normal IgA and IgM which rules out selective antibody deficiency. One could do IgG subsets, which is what the ENT is referring to but most of the total IgG is IgG type 1 so insurers are not likely to pay (nor should they) for IgG replacement in a patient with a normal total IgG even if IgG type 3 (for example) is low.
As to specific antibody deficiency, we did look at Hayden's vaccine response to pneumococcus which was great. This suggests that he is able to make antibody of sufficient quality.
We could look at Hayden's response to pneumococcal titers again at the upcoming visit to assess "immunoglobulin amnesia". This is a reasonable thing to consider.
.....additionally, we can consider a preventative antibiotic once weekly.
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kim22
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Post by kim22 on Jan 23, 2019 16:17:12 GMT -6
tgrimes I know you have mentioned H is barely on the charts for size. I recently meant someone with a kid with celiac and I asked her how she found out he had it. She said at a year old, he only weighed 12 lbs so was labeled failure to thrive and they started testing. I just googled gluten and ear infections and there appears there may be a link. Perhaps M and H both have something similar, manifesting in different ways?
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tgrimes
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Post by tgrimes on Jan 23, 2019 16:22:29 GMT -6
tgrimes I know you have mentioned H is barely on the charts for size. I recently meant someone with a kid with celiac and I asked her how she found out he had it. She said at a year old, he only weighed 12 lbs so was labeled failure to thrive and they started testing. I just googled gluten and ear infections and there appears there may be a link. Perhaps M and H both have something similar, manifesting in different ways? Good to know! I'll definitely ask about it. |
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Post by wineallthetime on Jan 23, 2019 16:26:26 GMT -6
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Post by wineallthetime on Jan 23, 2019 16:27:12 GMT -6
tgrimes I know you have mentioned H is barely on the charts for size. I recently meant someone with a kid with celiac and I asked her how she found out he had it. She said at a year old, he only weighed 12 lbs so was labeled failure to thrive and they started testing. I just googled gluten and ear infections and there appears there may be a link. Perhaps M and H both have something similar, manifesting in different ways? Good to know! I'll definitely ask about it. A friend of mine had the same thing happen with her little girl and it was celiac. |
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Post by wineallthetime on Jan 23, 2019 16:27:52 GMT -6
Goldi, that's adorable!
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tgrimes
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Post by tgrimes on Jan 23, 2019 16:33:48 GMT -6
Good to know! I'll definitely ask about it. A friend of mine had the same thing happen with her little girl and it was celiac. Same thing as in they weren't growing or same thing as in ear infections? |
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Post by wineallthetime on Jan 23, 2019 16:42:18 GMT -6
A friend of mine had the same thing happen with her little girl and it was celiac. Same thing as in they weren't growing or same thing as in ear infections? Oh sorry! I believe both. |
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Post by flamingo on Jan 23, 2019 16:53:00 GMT -6
Darn joelies I’m sorry, that stinks. I hope you heal fast and won’t need surgery! cagoldi that pic is the sweetest (and look at that child’s beautiful natural highlights, lol 😍😍) I hope P had a better day today. |
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Sunny41
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Post by Sunny41 on Jan 23, 2019 16:58:07 GMT -6
lfig I’m so sorry, probably far fetched but are there any clinical trials on that drug you can apply for? I think they are past the clinical trial stage for that drug. Check out clinicaltrials.gov and search by the drug. There might be something on there. There is also info on side effects I think. But if it just the payment there company won't approve then it is an approved drug I think. |
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mwhip
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Post by mwhip on Jan 23, 2019 17:15:29 GMT -6
Holy shit joelies! That sucks so bad. I hope it heals quickly! lfig your rant is completely deserved...so frustrating. |
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Post by lahdeedah on Jan 23, 2019 18:53:19 GMT -6
That sucks joelies ! Did you get a walking boot or do you get to use a knee scooter? Walking boot and crutches for 6 weeks. He said by 2 months I should be able to walk unassisted, and I could be running by 3-4 months. Even if I heal freakishly quickly, Boston is out for this year. But it doesn't impact our gtg at least! I’m sorry. That sucks. |
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trtlcrzy
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Post by trtlcrzy on Jan 23, 2019 18:54:10 GMT -6
That sucks joelies ! Did you get a walking boot or do you get to use a knee scooter? Walking boot and crutches for 6 weeks. He said by 2 months I should be able to walk unassisted, and I could be running by 3-4 months. Even if I heal freakishly quickly, Boston is out for this year. But it doesn't impact our gtg at least! Bummer! I hope it heals quickly! |
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Post by lahdeedah on Jan 23, 2019 18:57:24 GMT -6
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