New York ladies

[armpants]

You may or may not have seen that one of our member's daughter was recently diagnosed with Spinal Muscle Atrophy. It's a condition that be deadly, but has better results the earlier it is found. I'm linking a petition for New York to add SMA to the newborn screening panel. Please sign and share to help other families get the early care so desperately needed with this diagnosis.

Aug 14, 2017 10:24:44 GMT -6 allisong said:

To my NY friends: I started a petition - please sign and share when you have a moment.

www.change.org/p/howard-a-zucker-add-sma-to-the-nys-newborn-blood-screening-and-save-lives?recruiter=5297728&utm_source=share_petition&utm_medium=sms&utm_campaign=share_sms_responsive

[Betweenthelines]

Signed it yesterday

Thanks for sharing over here.

[jedi]

I saw that when I was lurking GD. How sad. I have a friend who lost her niece to that. She was less than a year old. This was almost 6 years ago and I think they've made a lot of advancements too. I know another lady whose son, he's like 15 has it.

[taketheshot]

Thanks armpants .. I'll sign now

[coconutbacon]

Signing now. Thanks for sharing armpants. I saw the initial post on GD and it breaks my heart.

[shellyr]

I'm not a New Yorker, so I don't go here, but my cousin has SMA type 3. He's 30 now, which is rare.
I had genetic testing before I was pregnant because it runs in my family. Thankfully I'm not a carrier.

I will keep this little girl and her family in my thoughts.