AmyG
Ruby
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Post by AmyG on May 22, 2024 17:36:37 GMT -6
gimmeaQ, musicfrk, if you think you go here, well you probably do. sorry about that.
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brux
Diamond
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Post by brux on May 22, 2024 17:37:14 GMT -6
thank you. It made it feel slightly better when I whined about it on the internet :-) I think that's very true that whining to the void is helpful. Sometimes it seems I only complain but really here is where I can get it all out and it helps me to formulate plans for what the f to do next. or if there is nothing to do next but to sit with it. precisely! It’s like sometimes I just need to say it out loud and it helps me acknowledge and adapt. |
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Post by miawallace on May 22, 2024 17:41:48 GMT -6
miawallace, glad you got pretty good drugs and no pain forgot to say that part I was glad it was all painless but man the aftermath kicked my ass. I feel like I’m 99% today. The yucks stopped yesterday and today I woke up and felt like things might be back to normal for me. |
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Post by miawallace on May 22, 2024 17:42:31 GMT -6
I think that's very true that whining to the void is helpful. Sometimes it seems I only complain but really here is where I can get it all out and it helps me to formulate plans for what the f to do next. or if there is nothing to do next but to sit with it. precisely! It’s like sometimes I just need to say it out loud and it helps me acknowledge and adapt. I’m a huge fan of whining about all my medical stuff. It truly helps me feel better. Especially on those bad days. |
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AmyG
Ruby
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Post by AmyG on May 22, 2024 17:45:45 GMT -6
I'm going thru and touching base with everyone's posts because I like when I get support here so I'm trying to give a bit of support back.
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AmyG
Ruby
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Post by AmyG on May 22, 2024 17:47:08 GMT -6
precisely! It’s like sometimes I just need to say it out loud and it helps me acknowledge and adapt. I’m a huge fan of whining about all my medical stuff. It truly helps me feel better. Especially on those bad days. I'm trying to crawl out of a hole of doing what I need to do each day but not much else. feeling my way up high enough so I can whine on the internet |
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AmyG
Ruby
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Post by AmyG on May 22, 2024 17:49:57 GMT -6
gimmeaQ, there is more and more work being done due to increasing association between a virus like COVID and all sorts of things, autoimmune and digestive, nerve and organ function. It's crazy. hope yours settles down or dr can come up with ideas on how to manage your pains.
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Post by miawallace on May 22, 2024 17:52:19 GMT -6
I’m a huge fan of whining about all my medical stuff. It truly helps me feel better. Especially on those bad days. I'm trying to crawl out of a hole of doing what I need to do each day but not much else. feeling my way up high enough so I can whine on the internet Girl I don’t know how you do it. I wish things didn’t always turn into uphills in order to get the medical attention you deserve. You’ve been at this for a while and I’d be whining too. |
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AmyG
Ruby
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Post by AmyG on May 22, 2024 17:56:17 GMT -6
musicfrk I read it all and I do not need a cookie. I ate too many cookies yesterday. CHF and PE I'm like I think I know those terms but only sort of. my good friend is a cardiac nurse practitioners and rattles off those kinds of things all the time when we talk. What is the original cause of your heart issues? It sounds pretty scary to me. I do know that you are your own best advocate.
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Post by AnnPerkins on May 22, 2024 17:56:19 GMT -6
Continued. The docs havent posted on my portal yet. I know my nurse initially mentioned fentanyl but I’m not sure if they actually gave it to me. Another nurse gave me a sedative first. The main nurse was like I’m going to give you pain meds but your procedure is going to be so fast you probably won’t end up feeling the effects. Then I was wheeled back to my first spot and told to lay on the side of my liver biopsy so that it adds pressure. I was like that about 1hr. Then I was told I can go on my back. Then I was given norco. And then i got sick. The nurses released me at 230 and not 145 bc I was throwing up and they wanted to make sure I didn’t need further medical attention. They gave me 2 doses of Zofran and an IV saline treatment to help with my sicks. Fun times. I was going to come back and give updates but I was feeling so sick. The actual biopsy was pretty fast and smooth and I don’t have pain at the site. But the rest of the stuff sucked. I got none of those things and am furious. I don't think I actually needed any of them, but it would have been nice to have been offered. A courtesy to let me know they cared. I'm glad you're feeling better and things went smoothly! |
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AmyG
Ruby
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Post by AmyG on May 22, 2024 18:03:39 GMT -6
I'm trying to crawl out of a hole of doing what I need to do each day but not much else. feeling my way up high enough so I can whine on the internet Girl I don’t know how you do it. I wish things didn’t always turn into uphills in order to get the medical attention you deserve. You’ve been at this for a while and I’d be whining too. I try to laugh cause it's easier to get thru a day with a laugh rather than a cry. Been working thru the minimum for a baby shower doing things that made me happy hoping that it would make dil happy too. They decided on an under the sea theme for baby stuff, hit the dollar tree and they had under the sea backdrops. Hang those up in the windows and ta da the house was all set. lol. I like to think thru silly ways to have an all out party without much work. Think silly names on foods you would serve anyways. small sub sandwiches, gummy fish and potato chips and blue punch--that kind of thing party games like guess how many goldfish in the jar. It was a distraction to do a little towards the party every day and now it's over and I'm back to dr appts and fighting with insurance and such. thinking of all my people's here and hope someone gets some good news, symptom improvement kinda things. |
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AmyG
Ruby
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Post by AmyG on May 22, 2024 18:30:38 GMT -6
Let's see,
May 2 I had a fluoroscope guided piriformis injection by pain dr. They use less lidocaine and less steroid from the report than the us guided piriformis injection at ortho, so I didn't have numb butt all day afterwards and I'm not sure I've gotten much relief. I was looking forward to having that one day of numb butt lol.
So piriformis is still mad, clamping down every day on sciatic nerve giving numb back of leg down to ankle and numb toes
still have numbness on back of heel that developed after botox injection
still have butt/piriformis and pelvic floor muscle pain every day.
still waiting for dr office and insurance to figure out what might be covered of the $3500 botox fees charged. At this point insurance says dr office did not send in for preauthorization so insurance doesn't have to pay anything, except dr office has proof they did send for preauthorization. such a mess there, but I'm not in the middle as go between yet. and that means I hold onto my $ for longer. If insurance covers it I may owe $1400 but good faith estimate from dr office was $399 so I wanna pay that or less.
pain dr increased nerve pain pill and changed my muscle relaxer. that's new this week so we shall see
insurance denied my sleep med Lunesta generic that i've been on for a year now, after first they required me to try Trazadone that would get me to sleep but not keep me asleep. This year they want me to try Ambien before they'll cover Lunesta. I tried ambien before procedure like 15 years ago and I never fell asleep and wandered the house. but that's not in a medical report so I get to try it again.
Tonight is first night. dh is wondering if he needs to sleep on the couch and listen for me sleepwalking. when he took ambien he did the sleep eating thing so we are not confident in the ambien as a sleep med.
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Post by musicfrk on May 22, 2024 23:23:36 GMT -6
musicfrk I read it all and I do not need a cookie. I ate too many cookies yesterday. CHF and PE I'm like I think I know those terms but only sort of. my good friend is a cardiac nurse practitioners and rattles off those kinds of things all the time when we talk. What is the original cause of your heart issues? It sounds pretty scary to me. I do know that you are your own best advocate. CHF is congestive heart failure, and PE is pulmonary embolism. Heart issues run in my dad's side of the family, but...I will spoiler along with more as it may be a trigger Technically my original diagnosis is PPCM, PeriPartum Cardiomyopathy. Basically, heart failure due to being pregnant, often striking in the last few months of pregnancy and up to a few months postpartum. Based on the symptoms, its often misdiagnosed as pre-eclampsia and/or pneumonia. My OB had been monitoring me for pre-e due to one random high BP reading, then in the ER 2 days before my emergency c-section was dx with pneumonia and sent home with a z-pack. I had been sick since February or March (ER dx was the beginning of June...), I couldn't lie down and breathe at the same time, super swollen, coughing up crap nonstop, etc. |
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AmyG
Ruby
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Post by AmyG on May 25, 2024 12:03:51 GMT -6
musicfrk I didn't realize yours had to do with pg. So sorry
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AmyG
Ruby
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Post by AmyG on May 25, 2024 12:05:05 GMT -6
My insurance denied my sleep med Lunesta I've been on a year because I need to try another med first (tried Trazadone already) So I get a surprise dr note and fill of Ambien How bad would it be that after 3 nights of Ambien I'm ready to tell my dr I've been sleep driving/cooking/eating/having sex whatever the fuck sounds legit plus BAD enough my insurance will let me get the "right" med back? Cause 3 nights of no sleeping waking up every hour or 2 and staying awake an hour before slightly going to sleep before waking up again is not working for me at all. Moved to better thread so my complaints can be in one place more easily ignored.  |
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Post by miawallace on May 25, 2024 13:10:57 GMT -6
AmyG I’m sorry for all the lack of sleep you’re having. I’ve heard pretty crazy stories of people on ambien. I don’t have any useful advice. Is it safe to stop those meds if they aren’t working?
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AmyG
Ruby
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Post by AmyG on May 25, 2024 13:20:06 GMT -6
AmyG I’m sorry for all the lack of sleep you’re having. I’ve heard pretty crazy stories of people on ambien. I don’t have any useful advice. Is it safe to stop those meds if they aren’t working? The ambien might not be working because of the withdrawal from eszoplicone(lunesta) because yes they can be addicting. But dr reassured that moving from one to the other shouldn't be an issue. Especially because I don't have to take the lunesta every single night. If I am tired and lay down and fall asleep I don't take it, which is about once a week sometimes twice. Tuesday I'm telling dr this isn't working. I have a few lunesta left over I may need to take between now and when dr and insurance company finish getting it appealed/approved. hopefully that works out. |
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Post by miawallace on May 25, 2024 13:31:20 GMT -6
AmyG I’m sorry for all the lack of sleep you’re having. I’ve heard pretty crazy stories of people on ambien. I don’t have any useful advice. Is it safe to stop those meds if they aren’t working? The ambien might not be working because of the withdrawal from eszoplicone(lunesta) because yes they can be addicting. But dr reassured that moving from one to the other shouldn't be an issue. Especially because I don't have to take the lunesta every single night. If I am tired and lay down and fall asleep I don't take it, which is about once a week sometimes twice. Tuesday I'm telling dr this isn't working. I have a few lunesta left over I may need to take between now and when dr and insurance company finish getting it appealed/approved. hopefully that works out. Hopefully your doctor changes it back to what’s been working for you and insurance approves it too. So much song and dance just to get different agencies to sync up. |
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AmyG
Ruby
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Post by AmyG on May 25, 2024 13:38:37 GMT -6
The ambien might not be working because of the withdrawal from eszoplicone(lunesta) because yes they can be addicting. But dr reassured that moving from one to the other shouldn't be an issue. Especially because I don't have to take the lunesta every single night. If I am tired and lay down and fall asleep I don't take it, which is about once a week sometimes twice. Tuesday I'm telling dr this isn't working. I have a few lunesta left over I may need to take between now and when dr and insurance company finish getting it appealed/approved. hopefully that works out. Hopefully your doctor changes it back to what’s been working for you and insurance approves it too. So much song and dance just to get different agencies to sync up. If I dig in my files, likely the preauthorization for the lunesta expired, cause I've been on it for about a year, and they usually approve it for a year. shouldn't have to get it reapproved and certainly shouldn't have to try another med before getiting it approved. Insurance run around. |
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Eagles
Opal
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Post by Eagles on May 27, 2024 1:44:56 GMT -6
My insurance denied my sleep med Lunesta I've been on a year because I need to try another med first (tried Trazadone already) So I get a surprise dr note and fill of Ambien How bad would it be that after 3 nights of Ambien I'm ready to tell my dr I've been sleep driving/cooking/eating/having sex whatever the fuck sounds legit plus BAD enough my insurance will let me get the "right" med back? Cause 3 nights of no sleeping waking up every hour or 2 and staying awake an hour before slightly going to sleep before waking up again is not working for me at all. Moved to better thread so my complaints can be in one place more easily ignored. You've tried/failed the Ambien, so your doctor needs to send a letter of medical necessity to the insurance company and then it should be covered. There's a specific fax number and department at mine, so you might have to call, ask for the prior auth department, and explain what's going on. They'll give you the number. I'm so sorry, I have to do this every year for one of my migraine meds. They decide that you have to try every drug in the class before they approve the thing that the doctor wants you to have. |
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AmyG
Ruby
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Post by AmyG on May 27, 2024 11:56:04 GMT -6
My insurance denied my sleep med Lunesta I've been on a year because I need to try another med first (tried Trazadone already) So I get a surprise dr note and fill of Ambien How bad would it be that after 3 nights of Ambien I'm ready to tell my dr I've been sleep driving/cooking/eating/having sex whatever the fuck sounds legit plus BAD enough my insurance will let me get the "right" med back? Cause 3 nights of no sleeping waking up every hour or 2 and staying awake an hour before slightly going to sleep before waking up again is not working for me at all. Moved to better thread so my complaints can be in one place more easily ignored. You've tried/failed the Ambien, so your doctor needs to send a letter of medical necessity to the insurance company and then it should be covered. There's a specific fax number and department at mine, so you might have to call, ask for the prior auth department, and explain what's going on. They'll give you the number. I'm so sorry, I have to do this every year for one of my migraine meds. They decide that you have to try every drug in the class before they approve the thing that the doctor wants you to have. Thanks yes I know why and what to do next- message my dr today so he reads it tomorrow and gets that prior auth to go thru. Dr wanted me to give ambien a good try not just a couple days. That has sucked. Last night the absolute worst yet. I think Not sleeping is ramping up my anxiety and pain which is making sleep even worse as they are so linked especially in my body. I'm gonna try to put it on the calendar to not be surprised again next year. I have I think 2 meds that are gonna hit at same time next year. So annoying |
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Post by miawallace on May 28, 2024 16:09:08 GMT -6
So I got the results of my biopsy back. GI said I have chronic bile duct injury that is suggestive of PBC. Ruled out Autoimmune Hepatitis (he was suspicious of that). Also said No significant scaring was noted. Staged me at 0. I’m taking all of it as a win. It’s weird bc I can get pretty symptomatic so I was thinking I was advancing with all this. I feel like Im always bracing myself for bad news. I have the worst health anxiety.  |
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AmyG
Ruby
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Post by AmyG on May 28, 2024 17:59:38 GMT -6
miawallace, Glad that's a win for you. we'll take it.
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Post by musicfrk on May 28, 2024 23:54:15 GMT -6
AmyG just catching up, sorry to hear about the insurance/med battles. Hoping you've been able to get somewhere with getting the medication you need
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byjove
Ruby
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Post by byjove on May 29, 2024 9:52:13 GMT -6
Looks like I’m going to switch my arthritis meds to an infusion. They told me it takes about half an hour. Any tips? I’m not needle shy, but can’t say I’m looking forward to doing this!
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AmyG
Ruby
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Post by AmyG on May 29, 2024 12:42:43 GMT -6
Looks like I’m going to switch my arthritis meds to an infusion. They told me it takes about half an hour. Any tips? I’m not needle shy, but can’t say I’m looking forward to doing this! Maybe hawkward has suggestions |
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AmyG
Ruby
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Post by AmyG on May 29, 2024 12:44:18 GMT -6
AmyG just catching up, sorry to hear about the insurance/med battles. Hoping you've been able to get somewhere with getting the medication you need I think my dr is on vacation this week so timing sucks. I had a few of my good sleep meds leftover so I've gone back to those and am hoping he is able to send in the correction with new prior authorization in place before I run out. I've slept pretty good for 2 nights now going back to the right ones. It's such a relief. |
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hawkward
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Post by hawkward on May 30, 2024 18:49:00 GMT -6
Looks like I’m going to switch my arthritis meds to an infusion. They told me it takes about half an hour. Any tips? I’m not needle shy, but can’t say I’m looking forward to doing this! Maybe hawkward has suggestions hydrate really really well the day before and day of, and eat lightly the day of. Complex carbohydrates are a good idea. Dress in layers with easy antecubital access. Even when they warm the fluids I feel really cold when I get infusions. |
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AmyG
Ruby
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Post by AmyG on May 30, 2024 19:49:17 GMT -6
hawkward glad to see I guessed right tagging you in here. How are you and yours?
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Post by Wtfshouldmynamebe on May 30, 2024 20:04:36 GMT -6
AmyG I have been on trazadone for years with good luck. The key is making sure you go to bed immediately after taking it. You also need a good sleep environment.
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