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Post by goldenbird on Oct 18, 2019 9:08:05 GMT -6
He's about the same today, but we also didn't sleep much last night. He has a lump in his belly that we did and xray and ultrasound on. It's likely just poop, but I haven't heard anything yet. Plan is still MRI and lumbar puncture/spinal tap. Big hugs. I hope you get some answers soon.
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kam3100
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Post by kam3100 on Oct 18, 2019 9:31:03 GMT -6
He's about the same today, but we also didn't sleep much last night. He has a lump in his belly that we did and xray and ultrasound on. It's likely just poop, but I haven't heard anything yet. Plan is still MRI and lumbar puncture/spinal tap. Ugh, I’m so sorry. I hope you get some answers. I’ve been keeping you in my thoughts.
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kam3100
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Post by kam3100 on Oct 18, 2019 9:34:45 GMT -6
He's about the same today, but we also didn't sleep much last night. He has a lump in his belly that we did and xray and ultrasound on. It's likely just poop, but I haven't heard anything yet. Plan is still MRI and lumbar puncture/spinal tap. I’m not in the medical field so please feel free to ignore this question, but could he be suffering a delayed allergic reaction to the bee sting he had? I hope you get some answers. I can only imagine how you’re feeling right now. Hugs to you.
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vvvvvfee
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Post by vvvvvfee on Oct 18, 2019 9:56:18 GMT -6
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Post by PennyCandy on Oct 18, 2019 10:22:33 GMT -6
He's about the same today, but we also didn't sleep much last night. He has a lump in his belly that we did and xray and ultrasound on. It's likely just poop, but I haven't heard anything yet. Plan is still MRI and lumbar puncture/spinal tap. I’m not in the medical field so please feel free to ignore this question, but could he be suffering a delayed allergic reaction to the bee sting he had? I hope you get some answers. I can only imagine how you’re feeling right now. Hugs to you. They think he has encephalitis cause by an immune response to....something, most likely vaccines or viral illness. Tests are scheduled for 3:00 and we are at the hospital at least another night. I'm not sure how I reconcile thst vaccines are literally my entire career and they may have made my child sick.
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Post by goldenbird on Oct 18, 2019 11:15:41 GMT -6
I’m not in the medical field so please feel free to ignore this question, but could he be suffering a delayed allergic reaction to the bee sting he had? I hope you get some answers. I can only imagine how you’re feeling right now. Hugs to you. They think he has encephalitis cause by an immune response to....something, most likely vaccines or viral illness. Tests are scheduled for 3:00 and we are at the hospital at least another night. I'm not sure how I reconcile thst vaccines are literally my entire career and they may have made my child sick. Any chance he contracted Mono? I hope it wasn't a vaccine reaction but I know it's possible. ❤ hang in there.
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Post by cornflakegirl on Oct 18, 2019 12:33:45 GMT -6
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kam3100
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Post by kam3100 on Oct 18, 2019 13:00:10 GMT -6
I’m not in the medical field so please feel free to ignore this question, but could he be suffering a delayed allergic reaction to the bee sting he had? I hope you get some answers. I can only imagine how you’re feeling right now. Hugs to you. They think he has encephalitis cause by an immune response to....something, most likely vaccines or viral illness. Tests are scheduled for 3:00 and we are at the hospital at least another night. I'm not sure how I reconcile thst vaccines are literally my entire career and they may have made my child sick. So sorry. What a hard pill to swallow. Is he showing improvement or anything yet?
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Post by PennyCandy on Oct 18, 2019 18:25:33 GMT -6
Everything came back clear. We're still waiting for some labs. He's starting to perk up and he ate a decent dinner. Should be able to go home tomorrow depending on how tonight goes.
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Post by goldenbird on Oct 18, 2019 18:30:22 GMT -6
Everything came back clear. We're still waiting for some labs. He's starting to perk up and he ate a decent dinner. Should be able to go home tomorrow depending on how tonight goes. I'm glad to hear that!
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kam3100
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Post by kam3100 on Oct 18, 2019 18:52:40 GMT -6
Everything came back clear. We're still waiting for some labs. He's starting to perk up and he ate a decent dinner. Should be able to go home tomorrow depending on how tonight goes. So weird, how can a kid be that sick and everything be clear? I really hope he’s on the mend for you.
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sasam
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Post by sasam on Oct 18, 2019 19:16:46 GMT -6
Glad everything came back clear PennyCandy! Hope he is back to 100% soon!
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Post by PennyCandy on Oct 18, 2019 20:02:47 GMT -6
Everything came back clear. We're still waiting for some labs. He's starting to perk up and he ate a decent dinner. Should be able to go home tomorrow depending on how tonight goes. So weird, how can a kid be that sick and everything be clear? I really hope he’s on the mend for you. I have no idea and no one else does either. They really thought he had encephalitis based on how he was presenting.
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Post by bananas22 on Oct 19, 2019 0:23:24 GMT -6
Glad to hear he’s doing better PennyCandy and that everything came back clear. Hope you are home soon!
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Post by doublestuf on Oct 19, 2019 7:59:26 GMT -6
What an awful roller coaster PennyCandy. I'm so sorry this has happened. Please make sure you're thinking about you too. If you need meds to deal with anxiety or help with sleeping, please ask for them.
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klw
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Post by klw on Oct 19, 2019 9:00:20 GMT -6
That's crazy PennyCandy. So do they have an explanation since they ruled out the encephalitis? Could it still be something related to the vaccines? I hope you are on your way home soon and can have a relaxing weekend
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Post by PennyCandy on Oct 20, 2019 7:34:06 GMT -6
We got home yesterday afternoon.
There really is no explanation and that doesnt exactly feel good. There are still some labs pending so we'll see what those say.
I'm going to fill out a report for the vaccine adverse event reporting system anyway or ask his pediatrician to.
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Post by PennyCandy on Oct 20, 2019 8:12:34 GMT -6
Poof
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Post by doublestuf on Oct 20, 2019 9:06:35 GMT -6
I was so glad to see his smiling face at the end PennyCandy! Poor baby and poor mama. I hope things settle this week and he continues to feel like his normal self.
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sasam
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Post by sasam on Oct 20, 2019 10:38:05 GMT -6
Glad he is feeling better PennyCandy! Hoping you both get some rest and that he continues to feel ok!
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Post by goldenbird on Oct 20, 2019 18:04:24 GMT -6
PennyCandy wow, I'm so glad you guys are home and has alright now. I totally understand the fear of not knowing what really happened. I hope nothing like that ever happens to him again. ❤
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Post by goldenbird on Oct 20, 2019 18:06:28 GMT -6
MH left this morning for a work trip. He won't be home until Wednesday afternoon. The baby monitor is always in his room because I have sleep issues, so I'm hoping I can sleep semi ok the next three nights. I've got a glass of wine; today was long but C did pretty well.
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Post by doublestuf on Oct 20, 2019 19:27:59 GMT -6
I'm a wimp about solo parenting goldenbird. I hate the anxiety of what if shit hits the fan and I can't tap out for a minute. I hope the time flies and C is an angel.
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Post by goldenbird on Oct 20, 2019 19:29:36 GMT -6
I'm a wimp about solo parenting goldenbird. I hate the anxiety of what if shit hits the fan and I can't tap out for a minute. I hope the time flies and C is an angel. Well he will be at DC (FX) and I'm off the next three days so yay for that!
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Post by pbandjelly on Oct 20, 2019 19:51:16 GMT -6
I'm a wimp about solo parenting goldenbird. I hate the anxiety of what if shit hits the fan and I can't tap out for a minute. I hope the time flies and C is an angel. Me too.
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Post by pbandjelly on Oct 20, 2019 19:55:00 GMT -6
PennyCandy im glad he's feeling better and I hope they can find an answer to what was making him sick. Lots of healthy, restful thoughts coming your way.
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klw
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Post by klw on Oct 20, 2019 19:55:58 GMT -6
Awww PennyCandy my heart breaks for how sad he looked in the middle pictures. It is so frustrating to not have answers especially when it comes to our babies. You are such a strong momma who has been through so much these past few months. ((hugs))
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klw
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Post by klw on Oct 20, 2019 19:56:37 GMT -6
I'm a wimp about solo parenting goldenbird. I hate the anxiety of what if shit hits the fan and I can't tap out for a minute. I hope the time flies and C is an angel. Well he will be at DC (FX) and I'm off the next three days so yay for that! Did you plan that?? Haha
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Post by doublestuf on Oct 20, 2019 20:24:06 GMT -6
Well he will be at DC (FX) and I'm off the next three days so yay for that! Did you plan that?? Haha Seriously...sounds like Heaven right now.
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Post by goldenbird on Oct 21, 2019 6:07:28 GMT -6
Well he will be at DC (FX) and I'm off the next three days so yay for that! Did you plan that?? Haha I sure did lol. My mom is on a cruise and she's the only other person who would be available for childcare. I had some vacation time left and we're not too busy at work so I asked for time off. Worst case, if he was sick, then I wouldn't have to call in.
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