chrisy01
Emerald
Posts: 11,003 Likes: 51,883 
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Post by chrisy01 on May 15, 2019 5:28:59 GMT -6
What’s happening ladies?
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chrisy01
Emerald
Posts: 11,003 Likes: 51,883
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Post by chrisy01 on May 15, 2019 5:30:28 GMT -6
I’m on the shuttle to go to work. I have a walk I’m doing. Since I get to leave early I’m picking LO up early and getting him a haircut
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Post by peachsmama on May 15, 2019 5:41:59 GMT -6
I'm exhausted by today's plans already..
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lfig
Sapphire
Posts: 4,461 Likes: 34,084
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Post by lfig on May 15, 2019 6:01:16 GMT -6
Morning. Just hanging with family today then headed to the hospital tonight for Sierra’s sleep study and mask fitting for her CPAP.
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guster
Emerald
Posts: 11,536 Likes: 67,147
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Post by guster on May 15, 2019 6:02:17 GMT -6
Early morning, chrisy01! lfig, hope it goes well tonightZ. Safe travels. |
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guster
Emerald
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Post by guster on May 15, 2019 6:03:58 GMT -6
Taking Charlie to a new toddler group this morning while Josie has school, and then we need to run to the grocery store to buy some ground chicken for tonight‘s dinner.
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guster
Emerald
Posts: 11,536 Likes: 67,147
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Post by guster on May 15, 2019 6:04:09 GMT -6
Taking Charlie to a new toddler group this morning while Josie has school, and then we need to run to the grocery store to buy some ground chicken for tonight‘s dinner.
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klong11
Ruby
Posts: 15,002 Likes: 86,174
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Post by klong11 on May 15, 2019 7:41:25 GMT -6
wedding I had a dream I was at your house for Christmas, just me. You gave C a present that was a box of toys that he had failed to pick up the night before and I thought it was a brilliant idea. You also kept bringing me coffee.
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tallb
Amethyst
Posts: 5,339 Likes: 33,900
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Post by tallb on May 15, 2019 7:53:14 GMT -6
Morning. We tried to instapot a bunch of the chicken that was half defrosted but it kind of smelled and I got grossed out, so annoyed wasting food😣. J said he didn't want to sign up for soccer again this summer at school, which was surprising since he seemed to love it..turns out he hates that the coach calls him Mr. baseball, most likely bc it's the same day as tball and normally wears his hat or a baseball shirt that day. His teacher feels awful and will take care of it.
Last night we got to tball at 5:59 and no one was there. I check my email at there was a cancellation email at 5:52. I had to leave my office at 4:30 to get us there, so I was not pleased to say the least. Mostly bc it was sunny out. J handled it the best, n screamed, and I was just tired.
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tgrimes
Diamond
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Likes: 139,245
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Post by tgrimes on May 15, 2019 8:24:37 GMT -6
mwhip Was your friend able to schedule her biopsy?
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wedding
Emerald
Posts: 14,402 Likes: 77,820
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Post by wedding on May 15, 2019 8:28:35 GMT -6
wedding I had a dream I was at your house for Christmas, just me. You gave C a present that was a box of toys that he had failed to pick up the night before and I thought it was a brilliant idea. You also kept bringing me coffee. Best host ever! |
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wedding
Emerald
Posts: 14,402 Likes: 77,820
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Post by wedding on May 15, 2019 8:30:18 GMT -6
Morning. We tried to instapot a bunch of the chicken that was half defrosted but it kind of smelled and I got grossed out, so annoyed wasting food😣. J said he didn't want to sign up for soccer again this summer at school, which was surprising since he seemed to love it..turns out he hates that the coach calls him Mr. baseball, most likely bc it's the same day as tball and normally wears his hat or a baseball shirt that day. His teacher feels awful and will take care of it. Last night we got to tball at 5:59 and no one was there. I check my email at there was a cancellation email at 5:52. I had to leave my office at 4:30 to get us there, so I was not pleased to say the least. Mostly bc it was sunny out. J handled it the best, n screamed, and I was just tired. That’s super annoying. Our coach last year canceled very close to time and it was so frustrating. Why did they cancel? |
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tgrimes
Diamond
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Post by tgrimes on May 15, 2019 8:44:11 GMT -6
I replied back the immunologist's message so i could "gently remind him" that this will be H's 3rd set of tubes. This is his response:
I understand. My impression is that the tubes are colonized. Let's see what Dr. Albright thinks. Like you, my focus is on what's best for Hayden.
I don't have any strong evidence that Hayden has an immune impairment thankfully.
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Post by wineallthetime on May 15, 2019 8:48:51 GMT -6
Taking Charlie to a new toddler group this morning while Josie has school, and then we need to run to the grocery store to buy some ground chicken for tonight‘s dinner. What are you making? |
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klong11
Ruby
Posts: 15,002 Likes: 86,174
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Post by klong11 on May 15, 2019 8:50:44 GMT -6
tgrimes, is being constantly sick not enough evidence of an immune impairment? It has to be something more than just the tubes. They wouldn't have colonized immediately after being put in, would they? Idk, I just don't get it. I'm really sorry you're having to deal with all of this.
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guster
Emerald
Posts: 11,536 Likes: 67,147
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Post by guster on May 15, 2019 8:54:52 GMT -6
Taking Charlie to a new toddler group this morning while Josie has school, and then we need to run to the grocery store to buy some ground chicken for tonight‘s dinner. What are you making? Super boring: it’s big salad Wednesday— Zoodles with chickpeas, feta, and garlic chicken over greens. |
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tgrimes
Diamond
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Post by tgrimes on May 15, 2019 8:55:55 GMT -6
tgrimes , is being constantly sick not enough evidence of an immune impairment? It has to be something more than just the tubes. They wouldn't have colonized immediately after being put in, would they? Idk, I just don't get it. I'm really sorry you're having to deal with all of this. I have no idea. It's one of the questions I have for the ENT. Right after the 2nd set he had a double EI. He was snotty when we he put the tubes in but didn't currently have an infection. That was a Tuesday and by Saturday he had fluid gushing out both ears. Then we were good for 1.5 months. Another question I have is if the tubes are colonized, would that cause him to be snotty, as well? Because to me it seems like he gets a cold and then it goes to his ears within 5 days. I don't know enough about the immune system and/or deficiencies to know whether I should keep pressing for me tests to be run. KWIM? |
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tgrimes
Diamond
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Post by tgrimes on May 15, 2019 8:56:10 GMT -6
Super boring: it’s big salad Wednesday— Zoodles with chickpeas, feta, and garlic chicken on over greens. That sounds really good. |
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klong11
Ruby
Posts: 15,002 Likes: 86,174
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Post by klong11 on May 15, 2019 9:02:50 GMT -6
tgrimes , is being constantly sick not enough evidence of an immune impairment? It has to be something more than just the tubes. They wouldn't have colonized immediately after being put in, would they? Idk, I just don't get it. I'm really sorry you're having to deal with all of this. I have no idea. It's one of the questions I have for the ENT. Right after the 2nd set he had a double EI. He was snotty when we he put the tubes in but didn't currently have an infection. That was a Tuesday and by Saturday he had fluid gushing out both ears. Then we were good for 1.5 months. Another question I have is if the tubes are colonized, would that cause him to be snotty, as well? Because to me it seems like he gets a cold and then it goes to his ears within 5 days. I don't know enough about the immune system and/or deficiencies to know whether I should keep pressing for me tests to be run. KWIM? Yeah. I feel like it has to be more than just his ears at this point. |
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tgrimes
Diamond
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Post by tgrimes on May 15, 2019 9:05:25 GMT -6
I have no idea. It's one of the questions I have for the ENT. Right after the 2nd set he had a double EI. He was snotty when we he put the tubes in but didn't currently have an infection. That was a Tuesday and by Saturday he had fluid gushing out both ears. Then we were good for 1.5 months. Another question I have is if the tubes are colonized, would that cause him to be snotty, as well? Because to me it seems like he gets a cold and then it goes to his ears within 5 days. I don't know enough about the immune system and/or deficiencies to know whether I should keep pressing for me tests to be run. KWIM? Yeah. I feel like it has to be more than just his ears at this point. I'm happy to find another immunologist. I just want to talk to the ENT first. |
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vino
Opal
Posts: 9,054 Likes: 56,450
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Post by vino on May 15, 2019 9:17:16 GMT -6
How was the new toddler group guster? Good luck for the sleep study and mask fitting lfig. I'm glad there's some conversation happening tgrimes, I hope they can collectively figure out what's going on so H feels better. |
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vino
Opal
Posts: 9,054 Likes: 56,450
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Post by vino on May 15, 2019 9:22:42 GMT -6
Morning.
Busy work day here; reports to wrap up, meetings and a lunch date with a few cross govt peers that I meet with that is formally called a 'personal advisory board', it's to network and brainstorm solutions to any issues we're facing. I was super hesitant at first but they've been a really great sounding board, given good advice and helped me with my resume, so now I look forward to meeting with them.
Soccer tonight and it's our night to brings snacks, half a watermelon and strawberries are what we have in the fridge so that's what they're getting.
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guster
Emerald
Posts: 11,536 Likes: 67,147
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Post by guster on May 15, 2019 9:24:13 GMT -6
How was the new toddler group guster? Good luck for the sleep study and mask fitting lfig. I'm glad there's some conversation happening tgrimes, I hope they can collectively figure out what's going on so H feels better. Cold! It was an outside nature center walk, but I met one of the moms from our home district, so that was helpful! |
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guster
Emerald
Posts: 11,536 Likes: 67,147
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Post by guster on May 15, 2019 9:24:41 GMT -6
Super boring: it’s big salad Wednesday— Zoodles with chickpeas, feta, and garlic chicken on over greens. That sounds really good. Thanks! I think all the pieces go together well. |
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wedding
Emerald
Posts: 14,402 Likes: 77,820
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Post by wedding on May 15, 2019 9:34:04 GMT -6
tgrimes were his antibody tests like the Iga, igm, and igg normal? I don’t remember but Dr google has me asking. Let me know if I’m being annoying. I’m sure you have searched the world by now but i figured its worth a look.
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inthekitty
Emerald
My eyes are up here.
Posts: 10,680 Likes: 69,748
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Post by inthekitty on May 15, 2019 9:34:25 GMT -6
Good luck tgrimes. I hope the conversation leads to getting to the bottom of what's going on with H. Have they rules out him being allergic to the tube material if that's even a thing? tallb super annoying. 😒 |
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Post by flamingo on May 15, 2019 9:36:35 GMT -6
Morning! Guess I'm officially an #old...I have glass on the (wood) tabletops in my family room now. Somebody put me out of my misery if I start leaving the cellophane wrapping on lampshades. No school tomorrow b/c it's parent-teacher conferences, so I'm trying to get stuff done today. I think I'm going to take the kids out to lunch and to the zoo after my meetings tomorrow. tallb Other than the last-minute cancellation (so annoying), how is baseball going? I wondered if B would miss it, but so far he hasn't mentioned it, and is laser-focused on golf. |
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tgrimes
Diamond
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Post by tgrimes on May 15, 2019 9:37:09 GMT -6
Good luck tgrimes . I hope the conversation leads to getting to the bottom of what's going on with H. Have they rules out him being allergic to the tube material if that's even a thing? tallb super annoying. 😒 That's another question I have. I believe the 2 sets of tubes he's had were different material though. I'm still going to ask the ENT. |
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inthekitty
Emerald
My eyes are up here.
Posts: 10,680 Likes: 69,748
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Post by inthekitty on May 15, 2019 9:37:17 GMT -6
Day 2 of conference. My crew stayed out so late last night. Ugh. I'm tired. We had fun though.
Maddie got to have the key turning expander thing removed from her mouth yesterday so she's thrilled. Cass had fun at K info night.
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Post by snoopmommymom on May 15, 2019 9:37:28 GMT -6
tgrimes I was asking yesterday about the mouth issue from a while ago because i was wondering if maybe there is something in his sinus/ear/nasal cavity that is causing him to get infections and that it might be related. I obviously have no clue about these things and i wish the drs would investigate everything at this point.
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