DOR Check-in 6/26

[lemonliz]

This is a check in for anyone dealing with being labeled a poor responder, sometimes called diminished ovarian reserve but also called pof or poi. All are welcome here no matter where you are along your journey or what kind of treatment you're seeking.

Come join us if you're a poor responder or otherwise ovarianly challenged! 


@4furrypaws
amberr
babyhopes
bonzo
dp21
@emmuffy
heartpresidents
Dogpaddle29
lemonliz
lillee
specter
woodenshoes

Check in with us whenever you feel like it!
amandaleigh
Shanangins
Ronniesgirl
Mushe


Grads:

SPOILER: Click to show

gratefulandthankful -- LL cycle (#9?)
fishchicks -- Round 2 IUI#1 with EPP and low stims
bootsorhearts — DE cycle
wannabmama - IVF#2
muscari - IVF#2
king26 - FET after 4 failed fresh IVFs
airbear916 — IVF#2
river — FET cycle
njnp528: surprise BFP after IVF#1
fishchicks: DHEA, TI#1 with EPP, low-stim + trigger
rslh10: FET cycle after IVF#1 w/PGS
wineandcupcakes: FET#1 w/depot Lupron treatment after IVF#3
runcici: FET#2 after DE cycle
roeni: FET#1 after IVF#4 and PGS
chrysanthemum: FET#1, 3 IVF banking cycles, CCS testing
sha259: FET#4 w/last frostie from IVF#1
emilie: IUI#4 with EPP and stims
unringthebell: IUI#2 after supplements and 2 septum surgeries
those3words: IVF#4 (no BCP) MDLF, supplementing DHEA and CoQ10
ronniesgirl: surprise BFP on DHEA after IVF#5
rn1175: DE IVF
katelm: IVF#3 FET#1 after PGS
tikoberry99: FET after IVF#1 w/PGS
pinotgrigio: surprise BFP after IVF#3
shananagins: FET, 2 IVF banking cycles, eSET PGS embryo
emmuffy: DW FET#1, IVF#2 w/HGH after DHEA and supplements
lilycakes78: IVF#2 MDLF
K1111K: IVF#3 MDLF, 2-day transfer of 4 embryos

[dp21]

I don't think I updated you guys. But I had the worst retrieval experience at the new clinic. 11 pokes and about an hour or more to get in an IV. My arms are bruised up and down. They finally got into a teeny tiny vein and the CRNA pushed the abx so fast that it burned soo bad I sobbed all the way through it. Post retrieval on Friday, I felt ok but Friday night I thought I was going to die. Sent hubby to fill the norco script they gave us at 11pm at night had to drive to a few towns over to find a 24 hr pharmacy (honestly didn't think I was going to need it, my old clinic would never write for norco and I was always fine with tylenol or ibuprofen or nothing). I was balled up in pain, called the doc at midnight and he had me come in Saturday morning for a scan and said everything was fine. He also did some blood work. I ended up calling off of work Saturday/Sunday. I still feel like crap today, I have one norco left (saving for tonight so I can sleep). Hubby is staying home from work to watch over me. We have never had a retrieval experience like this (this is our 4th, I'm usually fine the next day....I was planning to work!!!!).

We retrieved 6 eggs and only 3 fertilized. I feel like switching clinics was a big mistake. So far nothing is going better and in fact it seems everything is worse. I'll update after I get the phone call.

[bonzo]

That sounds awful dp21! I'm so sorry your experience was so bad at the new clinic. I hope you feel better soon!

AFM, not much new here. I had BW done Thursday to check my DHEA levels and they've had me restart that at the half dose that was working for me. Sounds like they still want to check my levels every 2 weeks like they were doing before. Other than that, just working and keeping busy until our WTF on the 5th.

[lemonliz]

bonzo, it sounds like such a PITA to have to do that with the DHEA level checks! Any way they could just keep you on a small dose and leave it there? I know you're not nearby your clinic.

dp21, I ACTUALLY CRINGED just reading that because I knew exactly what you meant when you said you could feel the abx. The. freaking. worst. I have great veins but I had someone botch an IV before a laparoscopy once. I still shudder thinking of it.

I hope that your 3 are perfect and lovely tomorrow! I know that feeling of regret about IF decisions all too well and I hope that you don't beat yourself up over it. You did everything you could have done, with all of the information you had. Sometimes I'm convinced there are just bad cycles. She predated your time on DOR but ronniesgirl did the same protocol at an amazing clinic two times (after 3 failures elsewhere) and one time it was amazing and she got 3 frosties out of the deal, and the other time it was a HUGE failure and would up with nothing. Sometimes this shit just isn't logical. So be gentle with yourself. You made the best decision you could have at the time.

[lemonliz]

I will probably start estrogen priming again soon, but we're just waiting to make sure that my P4 indicates I ovulated.

We're moving out of state in a month and I have so much stuff to do and I can't believe we're going to cycle in the midst of this LOL! But if we don't get clearance to do it now, we'll have to figure out the logistics of cycling from NC, which seems like a bigger pain in the butt. So oh well! 6 of one, half dozen of another!

[dp21]

lemonliz, and bonzo, thanks ladies.

I just got off the phone with the doctor, we have a 7 cell, a 6 cell, and a 5 cell. This is also the worst report that I've received. I'm really bummed right now and soo f'in mad.

[woodenshoes]

dp21 I am sorry that things aren't going as well as you hoped. That is so frustrating. I hate getting IVs they rarely are successful getting them into me on the first try. I hope you get some better news soon and everything ends up positive at the end of this.

bonzo I hope the the time until you wtf appointment goes quickly.

lemonliz moving and cycling at the same time sounds stressful. I hope it all goes as smoothly as possible for you.

AFM, egg retrieval was Sat. We got 7 eggs, 6 mature, but only 2 fertilized. They said the quality was poor. I got that news yesterday and was very upset. We transferred both of them this morning. There was a rainbow on the drive in to the clinic this morning. It brought me peace and hope. My beta is July 7. In the mean time I am praying and hoping for a miracle.

[bonzo]

lemonliz, I'm actually really close to my clinic. Their main office is just 10 minutes from my house, and the office with my favorite phlebotomist is about 20 minutes away. The reason they want to check my DHEA frequently is because my serum levels spiked so high on the standard dose. So, it's mildly inconvenient but not too bad.

[Dogpaddle29]

dp21 I'm so sorry you had such an awful experience. I have my FX for your 3.
lemonliz good luck with everything! I hope you ovulated so you can get started.
woodenshoes I have everything crossed for you!!

AFM: I am 5 days past 5 day FET. I feel nothing. I plan to test Wednesday and beta is Friday.
I had my family members memorial Sunday which was better than I thought it would be but the family dynamics are strange so there were definitely some uncomfortable moments.
I have my best friends birthday dinner tomorrow night and since I'm not drinking I'm afraid of the questions. They know our situation but we didn't tell anyone about our FET this time except for immediate family.
I just need the time to speed up so I can get through all this...


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[babyhopes]

FX you get your results soon and can get started again, lemonliz. Do you plan on switching to an RE in NC?

I am so sorry, dp21. Your ER sounds awful and I'm sorry things turned out so bad. Rooting for your three. Hang in there.

Hope they get your DHEA does sorted soon, bonzo.

Congrats on being PUPO, woodenshoes. I am going to be hopeful for you and pray you get your miracle.

You are getting so close, Dogpaddle29. Do you still plan to pee on all the things Wednesday?

AFM, still waiting on AF to show her face! I guess it's taking a little longer for my cycle to sort itself out after almost four months straight of meds to get to our FET. Hopefully it'll be here soon.

Does anyone take L'arginine? I am undecided on whether I want to start taking it. I read it could help with blood flow to the uterus. I also read that woman who took it had lower quality of eggs at ER and had poorer IVF outcomes. lemonliz, know anything about it?

[dp21]

bonzo, I'm sure the WTF feels like forever away. Hugs through this tough time.

lemonliz, I'll try to remember that sometimes shit is just not logical. I just feel like so many bad things at this clinic from messing up my meds to botching my IV placement. It definitely had a cumulative effect. We will see how these three turn out. They didn't even prep me for a transfer, so they will be completely lost if we don't make it to blast. I'm a little irked by it and it didn't even dawn on me.

woodenshoes, I'm going to be praying hard for both of us. Sounds like we have similar outcomes. Big hugs.........

Dogpaddle29, FX with your resting. I hope it's good news and not disappointment. Hugs.

babyhopes, I don't but I think it's in my book it starts with the egg. I can't remember, I'll try to find my book later and look it up for you. Still not feeling well right now, so won't do it tonight but maybe tomorrow.

So I think this job with IF coverage will pull through but it's at my old clinic. Wondering if I should just go ahead and use it up and hope for the best. I have some IF bills despite 100% coverage like a 5K bill in my purse right now. It's giving me anxiety to deal with the insurance company.

[Dogpaddle29]

babyhopes yep I sure do. I hope AF shows soon!




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[bonzo]

babyhopes, my RE had L arginine on the list of supplements he wanted me to take, so I've been on it since March. But It Starts With the Egg actually recommends against it, especially for DOR, because it can lower quality. That and the myo inositol are actually things I want to ask my RE about, since he put me on them but it seems there's some newer research that they aren't good for DOR.

[lemonliz]

babyhopes, I have read things both in favor and against l-arg. MH is on it because it has seemed to help his MFI but I haven't really ever tried it. I might reconsider it again if we transfer after banking!

[babyhopes]

dp21, I totally forgot I had that book. How are you feeling?

I have decided not to take it after reading that it impacts egg quality, bonzo. I would maybe skip both since you are going to do another stim cycle. I'm interested in hearing why your RE thinks they'll help.

Interesting that YH takes it, lemonliz. I can't get DH to take his daily vitamin unless I put it in his hand. I know he couldn't possibly handle taking more than one vitamin a day! I don't think it's worth the risk for me.

[dp21]

babyhopes, still feeling like crap but now I think it might be constipation from pain meds. So I'm loading up on miralax today and hoping I start to feel better!

I will find out about my embryos today. Praying praying we have a normal blast or two to make this hellish experience worth it.

On a side note, I got the job with IF coverage. It means going back to my old clinic. It's 80% coverage, 20K max. We will take it. Just not sure how I'll fit in cycling with new job.

[dp21]

Two morulas, one stopped progressing. Will update again tomorrow.

[dp21]

We ended up with two low quality blasts, 6CC. The blasts are too risky to biopsy, so genetic testing is off table. I am also going to take ERA off table with crappy blasts plus my trust isn't great in this clinic. The less they have to do to me, the better. Going to transfer both with my next period and then close chapter on this new clinic.

I might try to switch insurance with start of this new job. The timeline might cut too close and we may need to wait till Dec.

[Dogpaddle29]

dp21, I am sorry the grade isn't what you had hoped and your new clinic really let you down. My fingers are crossed for your two though!

[birch113]

Hey guys. It's been a crazy week. I'm
Sorry I've been MIA!

I'll be back to tag, but I'm just leaving morning monitoring and our cycle is probably going to be cancelled. I have three follicles measuring 17, 14, and 10.6. I have 8 unmeasurables. The RE expects to retrieve two unless the unmeasurables have major growth between now and Sunday. This cycle we are doing MDLF with 300 gonal and 150 Menopur. Last cycle (7/2016) we did antagonist and I had 12R, 9M, 8F and 2 CCS normal blasts (Day 6 and Day 7). The Day 6 transfer failed and we opted to cycle again rather than transfer the Day 7.

I'm rambling. I guess I'm wondering 1. Would you cancel? 2. If we cancel, should we be pushing for MDLF with EP, or give antagonist another shot? Is there anything else I should be considering? I just want to be prepared for that conversation.

[lemonliz]

2 blasts is still pretty great, DP21! But I completely understand your disappointment. I wish your experience at your new clinic would have been better.

[lemonliz]

birch113, MDLF wasn't my best either! I would go back to the antagonist and maybe add EP. It seems like the antagonist worked better for you than the MDLF.

But I'm sorry you have to cancel. I would cancel, just because I KNOW you can do better than 3. You've done it before. That's always my standard for cancelling: can you honestly do better? I think in your case the answer is yes.

[birch113]

Jun 30, 2017 6:53:52 GMT -6 lemonliz said:

birch113, MDLF wasn't my best either! I would go back to the antagonist and maybe add EP. It seems like the antagonist worked better for you than the MDLF.

But I'm sorry you have to cancel. I would cancel, just because I KNOW you can do better than 3. You've done it before. That's always my standard for cancelling: can you honestly do better? I think in your case the answer is yes.

Thanks so much. I really appreciate your input!

For the EP, can I start that this cycle, or do I need to have a cycle where I ovulate on my own to begin?

Our RE got our contract for CCS testing extended through July. I'm not sure there's any way to make the cut off now, but we many have a small chance if we can go immediately into another cycle. Frick.

[lemonliz]

Jun 30, 2017 11:06:39 GMT -6 birch113 said:

Jun 30, 2017 6:53:52 GMT -6 lemonliz said:

birch113, MDLF wasn't my best either! I would go back to the antagonist and maybe add EP. It seems like the antagonist worked better for you than the MDLF.

But I'm sorry you have to cancel. I would cancel, just because I KNOW you can do better than 3. You've done it before. That's always my standard for cancelling: can you honestly do better? I think in your case the answer is yes.

Thanks so much. I really appreciate your input!

For the EP, can I start that this cycle, or do I need to have a cycle where I ovulate on my own to begin?

Our RE got our contract for CCS testing extended through July. I'm not sure there's any way to make the cut off now, but we many have a small chance if we can go immediately into another cycle. Frick.

Yeah, as soon as you ovulate or trigger (maybe a Lupron trigger?) you can start estrogen priming a few days later. Same cycle. That's what we're doing this time.

I bet you can get it in by the new deadline!

[birch113]

Jun 30, 2017 16:12:15 GMT -6 lemonliz said:

Jun 30, 2017 11:06:39 GMT -6 birch113 said:

Thanks so much. I really appreciate your input!

For the EP, can I start that this cycle, or do I need to have a cycle where I ovulate on my own to begin?

Our RE got our contract for CCS testing extended through July. I'm not sure there's any way to make the cut off now, but we many have a small chance if we can go immediately into another cycle. Frick.

Yeah, as soon as you ovulate or trigger (maybe a Lupron trigger?) you can start estrogen priming a few days later. Same cycle. That's what we're doing this time.

I bet you can get it in by the new deadline!

That's a relief to hear. Making the July deadline would be huge. I think it has to be an HCG trigger since I'm using MDLF, no? I thought a Lupron trigger wouldn't work if you were already using it in your protocol, but I could be wrong.

[birch113]

dp21 I'm so sorry for your awful experience and that you regret changing clinics. Congrats on the job! I'm sorry about the grading of your blasts. Are you planning to return to your old clinic or find a new one?

bonzo sorry for all the DHEA stress.

lemonliz sending you all the good thoughts for EP!

woodenshoes (((hugs))) I love that you saw a rainbow for your transfer.

@hometosara thinking of you!

babyhopes Forgot about l'arg from ISWE. I didn't know it can impact egg quality.

[dp21]

birch113, will be returning to old clinic because my new insurance will dictate it with new job.

[birch113]

I'm panicking. Just leaving monitoring. I have a 20, 19, 17 and one more that the RE I saw thinks may catch up after trigger. This RE thinks we should move forward. I have to decide by 11.

[dp21]

birch113, Eek! What did you decide, just seeing this now!

[birch113]

Jul 3, 2017 8:17:00 GMT -6 dp21 said:

birch113, Eek! What did you decide, just seeing this now!

I triggered last night. ER is scheduled for tomorrow at 10:30. I'm waiting for Finance to get back to me about coverage maxes (I'm not sure what our benefit cap is) and I'm waiting on a call back from my RE for his input. I still feel really mixed, but it will probably be determined by insurance.