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Post by jubilantsquirrel on Feb 25, 2019 11:21:36 GMT -6
danib , I'm sorry. But I'm glad they caught it now so some preventative measures can take place. Hugs with a cleaning every 3 months though. So I was on the GD board and saw a thread about ASD and a speech delayed kid. They mentioned echolalia which is a red flag for ASD (among other things) and I'm wondering if anyone knows more? A few of L's phrases may be from Thomas or other TV shows like "I did it!" and "I know" He doesn't always use them properly, like it seems he says "I did it!" even when he didn't do but DH or I did it. I'm probably siting here working myself up for nothing with my scotch on the rocks but also reading, it's not always an obvious symptom. Plus his obsession with Trains!?! Someone talk me off the edge. DS1 has echolalia. Basically he repeats things back just like he hears them. So he'll say "Do you want some water?" instead of "Can I have some water". Or "I like your shoes" when he means "I like my shoes". Or "Can I help you?" instead of "Can you help me?". I think repeating words and phrases is normal to an extent. I don't think I would worry about L saying "I did it" when you or your H do something. That sounds normal to me. |
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Post by jubilantsquirrel on Feb 25, 2019 11:29:45 GMT -6
DS1 will have his 5 year checkup next month and I'll be asking for a neurological exam. I believe we are facing an ASD diagnosis.
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Post by cookswithwine on Feb 25, 2019 12:38:08 GMT -6
DS1 will have his 5 year checkup next month and I'll be asking for a neurological exam. I believe we are facing an ASD diagnosis. I’m sorry to hear this. I hope the tests will give you clarity and a clear path forward. |
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Post by sophiegrace on Feb 25, 2019 12:46:20 GMT -6
DS1 will have his 5 year checkup next month and I'll be asking for a neurological exam. I believe we are facing an ASD diagnosis. How are you feeling about it? J seems like such an amazing little guy from how you describe him. I hope if the diagnosis comes that it brings nothing but guidance into helping become the best person he can be. |
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Post by jubilantsquirrel on Feb 25, 2019 12:54:39 GMT -6
DS1 will have his 5 year checkup next month and I'll be asking for a neurological exam. I believe we are facing an ASD diagnosis. How are you feeling about it? J seems like such an amazing little guy from how you describe him. I hope if the diagnosis comes that it brings nothing but guidance into helping become the best person he can be. If I'm being honest I've thought this would be the case since he born. He came out with his hand up by his ear, and as soon as the nurse told me that something in me just knew he wasn't going to be a neurotypical child. Sounds 100% insane, I know, but I've just always felt this would be our path with him. He has an IEP at his preschool, but I'm hoping if he we can get a diagnosis it will open more doors not just for him but for us as parents as well. Sometimes we don't know how to handle his behaviors. When he gets upset it's really hard to calm him down and most things we try just upset him even more. He doesn't get physical really, but he screams and screams and screams. I think he needs help sorting through his emotions and I think we need the tools to best help him. He's a really happy kid overall. I just want him to be able to semi fit in and maybe make a friend or two along the way. |
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waitwhat
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Post by waitwhat on Feb 25, 2019 12:56:00 GMT -6
How are you feeling about it? J seems like such an amazing little guy from how you describe him. I hope if the diagnosis comes that it brings nothing but guidance into helping become the best person he can be. If I'm being honest I've thought this would be the case since he born. He came out with his hand up by his ear, and as soon as the nurse told me that something in me just knew he wasn't going to be a neurotypical child. Sounds 100% insane, I know, but I've just always felt this would be our path with him. He has an IEP at his preschool, but I'm hoping if he we can get a diagnosis it will open more doors not just for him but for us as parents as well. Sometimes we don't know how to handle his behaviors. When he gets upset it's really hard to calm him down and most things we try just upset him even more. He doesn't get physical really, but he screams and screams and screams. I think he needs help sorting through his emotions and I think we need the tools to best help him. He's a really happy kid overall. I just want him to be able to semi fit in and maybe make a friend or two along the way. I have never heard of that before. That means something? |
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Post by jubilantsquirrel on Feb 25, 2019 12:59:01 GMT -6
If I'm being honest I've thought this would be the case since he born. He came out with his hand up by his ear, and as soon as the nurse told me that something in me just knew he wasn't going to be a neurotypical child. Sounds 100% insane, I know, but I've just always felt this would be our path with him. He has an IEP at his preschool, but I'm hoping if he we can get a diagnosis it will open more doors not just for him but for us as parents as well. Sometimes we don't know how to handle his behaviors. When he gets upset it's really hard to calm him down and most things we try just upset him even more. He doesn't get physical really, but he screams and screams and screams. I think he needs help sorting through his emotions and I think we need the tools to best help him. He's a really happy kid overall. I just want him to be able to semi fit in and maybe make a friend or two along the way. I have never heard of that before. That means something? I don't believe so. A lot of the kids that MH has worked with that have autism will put their hand up to their ear/side of their face as a way to comfort themselves. So I think I just associated it with that. I don't believe it actually means anything, but it's where my mind went to right away. |
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waitwhat
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Post by waitwhat on Feb 25, 2019 13:05:17 GMT -6
Shit. Ok so now im more confused then ever. B still has a hard time differentiating between "you" and "me". Like, if I show him his reflection in the mirror and I ask "who is that?" sometimes he'll say "that's you" because I usually say to him "that's you!" In my head that makes sense why he would confuse the two. I get he's only 3.5 so maybe that isn't a mastered skill yet? I don't know. In addition to this, he will open up the pantry and say "what you want mommy" but that's the only time he asks for things in that way. Like if he wants water he usually will say "blue water mommy?" (indicating the cup color). So I sort of chalked it up to him confusing the you/me/I thing but maybe its more than that? If I ask him questions he doesn't repeat the question back to me. He's pretty good about saying yes or no.
We are also currently working on having him answer questions appropriately. A lot of times he answers with the same phrase that does or doesn't make sense. Its like he can't come up with answers on his own but again, I chalked it up to him having a speech delay and figured they go hand in hand and that's it.
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Post by jubilantsquirrel on Feb 25, 2019 13:33:08 GMT -6
Shit. Ok so now im more confused then ever. B still has a hard time differentiating between "you" and "me". Like, if I show him his reflection in the mirror and I ask "who is that?" sometimes he'll say "that's you" because I usually say to him "that's you!" In my head that makes sense why he would confuse the two. I get he's only 3.5 so maybe that isn't a mastered skill yet? I don't know. In addition to this, he will open up the pantry and say "what you want mommy" but that's the only time he asks for things in that way. Like if he wants water he usually will say "blue water mommy?" (indicating the cup color). So I sort of chalked it up to him confusing the you/me/I thing but maybe its more than that? If I ask him questions he doesn't repeat the question back to me. He's pretty good about saying yes or no. We are also currently working on having him answer questions appropriately. A lot of times he answers with the same phrase that does or doesn't make sense. Its like he can't come up with answers on his own but again, I chalked it up to him having a speech delay and figured they go hand in hand and that's it. I think this is normal, especially if you factor in his speech delay. |
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Post by sophiegrace on Feb 25, 2019 13:34:12 GMT -6
If I'm being honest I've thought this would be the case since he born. He came out with his hand up by his ear, and as soon as the nurse told me that something in me just knew he wasn't going to be a neurotypical child. Sounds 100% insane, I know, but I've just always felt this would be our path with him. He has an IEP at his preschool, but I'm hoping if he we can get a diagnosis it will open more doors not just for him but for us as parents as well. Sometimes we don't know how to handle his behaviors. When he gets upset it's really hard to calm him down and most things we try just upset him even more. He doesn't get physical really, but he screams and screams and screams. I think he needs help sorting through his emotions and I think we need the tools to best help him. He's a really happy kid overall. I just want him to be able to semi fit in and maybe make a friend or two along the way. I have never heard of that before. That means something? The hand up by the ear? M came out that way and I automatically assumed she would be a little hell raiser. |
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waitwhat
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Post by waitwhat on Feb 25, 2019 13:37:24 GMT -6
Shit. Ok so now im more confused then ever. B still has a hard time differentiating between "you" and "me". Like, if I show him his reflection in the mirror and I ask "who is that?" sometimes he'll say "that's you" because I usually say to him "that's you!" In my head that makes sense why he would confuse the two. I get he's only 3.5 so maybe that isn't a mastered skill yet? I don't know. In addition to this, he will open up the pantry and say "what you want mommy" but that's the only time he asks for things in that way. Like if he wants water he usually will say "blue water mommy?" (indicating the cup color). So I sort of chalked it up to him confusing the you/me/I thing but maybe its more than that? If I ask him questions he doesn't repeat the question back to me. He's pretty good about saying yes or no. We are also currently working on having him answer questions appropriately. A lot of times he answers with the same phrase that does or doesn't make sense. Its like he can't come up with answers on his own but again, I chalked it up to him having a speech delay and figured they go hand in hand and that's it. I think this is normal, especially if you factor in his speech delay. I feel like I've been living under a rock because before reading that thread on GD I had never heard of echolalia. Even given the fact that B is in speech therapy I have never heard that term. I always assumed because kids learn by copying what you say that when they copy phrases in conversation that it was normal. I guess I should just ask his speech therapist her thoughts. Again, I feel like we have so much information and knowledge about the topic so we second guess every little thing and its driving me insane. |
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Post by goldenlove on Feb 25, 2019 13:57:53 GMT -6
I don't even want to look at that GD thread. I don't know if you guys will remember but when C was a ~5 months old, we had to take him in for a head ultrasound because his head grew more than usual (I think it was more his head rounding out). Everything came back fine but there was some type of fluid found. Of course I googled the crap out of the results and I saw one study that said that there is an increase of ASD with this condition. My pediatrician was not concerned but I was watching every little thing he did and was paranoid about his repetitive habits and lack of words. I'm currently not concerned about it though and I'd rather not freak myself out.
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Post by jubilantsquirrel on Feb 25, 2019 13:58:51 GMT -6
I think this is normal, especially if you factor in his speech delay. I feel like I've been living under a rock because before reading that thread on GD I had never heard of echolalia. Even given the fact that B is in speech therapy I have never heard that term. I always assumed because kids learn by copying what you say that when they copy phrases in conversation that it was normal. I guess I should just ask his speech therapist her thoughts. Again, I feel like we have so much information and knowledge about the topic so we second guess every little thing and its driving me insane. If your speech therapist hasn't mentioned it before then I would think it's probably not a concern. But definitely bring it up at his next appointment! I found this article www.speechandlanguagekids.com/echolalia-when-children-repeat-what-you-say/Maybe that might help a little? |
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waitwhat
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Post by waitwhat on Feb 25, 2019 14:16:01 GMT -6
I feel like I've been living under a rock because before reading that thread on GD I had never heard of echolalia. Even given the fact that B is in speech therapy I have never heard that term. I always assumed because kids learn by copying what you say that when they copy phrases in conversation that it was normal. I guess I should just ask his speech therapist her thoughts. Again, I feel like we have so much information and knowledge about the topic so we second guess every little thing and its driving me insane. If your speech therapist hasn't mentioned it before then I would think it's probably not a concern. But definitely bring it up at his next appointment! I found this article www.speechandlanguagekids.com/echolalia-when-children-repeat-what-you-say/Maybe that might help a little? That was a helpful link. thank you! |
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Post by jubilantsquirrel on Feb 25, 2019 15:02:30 GMT -6
That was a helpful link. thank you! It's so easy to read into behaviors and think that there's something more at play. It's also easy to explain away red flags as something more benign. Why didn't anyone tell us how hard this parenting thing would be?! |
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waitwhat
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Post by waitwhat on Feb 25, 2019 15:57:10 GMT -6
That was a helpful link. thank you! It's so easy to read into behaviors and think that there's something more at play. It's also easy to explain away red flags as something more benign. Why didn't anyone tell us how hard this parenting thing would be?! Exactly! I like how the article explained figuring out why the kid is showing Echolalia. That reassured me a bit. He has speech tomorrow morning also so I do plan to bring this up to his therapist and hear her thoughts. |
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hangry
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Post by hangry on Feb 25, 2019 19:22:03 GMT -6
jubilantsquirrel I’m glad you have a plan to raise your concerns at J’s check up, if only for peace of mind. I wanted to share with you some of the things my sister said to me as I told her about my concerns with my O. As for background, she has her bcba, is an applied behavioral therapist, and worked with autistic kids for many years before her current public school job. She said, if you aren’t afraid of information, then asking for an assessment is the way to go. Regardless of the diagnosis (or lack there of), they would still likely be able to give you strategies to deal with your current issues. And if he’s made it this far without an obvious diagnosis and has gotten by ok, than any diagnosis and appropriate treatment will allow him to thrive. This sounds like your DS1 too, which is why I wanted to share with you. I know you’ve said in the past that YH is having a harder time accepting this possibility, so I hope he’s in a better place now to see the possible benefits.
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Post by jubilantsquirrel on Feb 25, 2019 21:30:33 GMT -6
Thank you hangry! That is really helpful. It's interesting, when I look back at what I would consider red flags a couple years ago, he's outgrown a lot of them. For example, his obsession with wheels isn't nearly as intense as it once was. We used to not even be able to be near anything with wheels or that is all he would care about. Strollers at the park or the pool, all he wanted to do was push it. He would lay on the floor with his cheek down watching the wheels move. He also would flip over any toy with wheels and just spin them. While he still likes anything with wheels, he now plays with them appropriately and can be around strollers or shopping carts without freaking out because he can't push them. So right now my biggest concern is his speech and social/emotional behavior. He's not aggressive at all, but he doesn't know how to interact with other kids. I'm hopeful if we can get him additional help outside of private speech and the developmental preschool that will help significantly. I want him to be able to express himself, but I think we just need the tools to be to help him navigate his feelings. I think a lot of that has to do with his speech. It's still pretty delayed, but I'm seeing a lot of improvements. |
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waitwhat
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Post by waitwhat on Feb 26, 2019 8:14:42 GMT -6
So B had speech this morning and I talked to his therapist about Echolalia. She said that although he does do some repeating it’s mores because he doesn’t know what to say and knows he is expected to say something so he just repeats what he hears. But, she said she’s actually seen improvements in this area as he’s understanding langugage more and that he doesn’t repeat things nearly as much as he used to. I brought up the link to autism and she doesn’t think it’s at that level and she isn’t concerned about it. But we did touch lightly on the subject of OT and how it might benefit him to get some help in that area.
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