loony
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Post by loony on Sept 22, 2018 20:08:27 GMT -6
jorkzy - I just feel bad that she has to rely on people to get her to and from. I really enjoyed having my freedom when nothing else was in my control.
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jorkzy
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Post by jorkzy on Sept 22, 2018 20:13:12 GMT -6
jorkzy - I just feel bad that she has to rely on people to get her to and from. I really enjoyed having my freedom when nothing else was in my control. Oh for sure. It's like, just one more thing she has to deal with right now. Plus, like you say, another thing out of her control. It's a tough situation all-round.
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addymac
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Post by addymac on Sept 22, 2018 20:13:44 GMT -6
jorkzy - I just feel bad that she has to rely on people to get her to and from. I really enjoyed having my freedom when nothing else was in my control. Totally understandable. I’m glad she has a decent plan and support system in place for when she’s discharged. Thank goodness for your aunt and uncle. Sending you all hugs.
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loony
Emerald
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Post by loony on Sept 22, 2018 20:17:42 GMT -6
jorkzy - I just feel bad that she has to rely on people to get her to and from. I really enjoyed having my freedom when nothing else was in my control. Totally understandable. I’m glad she has a decent plan and support system in place for when she’s discharged. Thank goodness for your aunt and uncle. Sending you all hugs. Thanks. Silver linings. She’s spent many nights there over the years. They were her emergency contact when sick at boarding school (which is 20 minutes in the other direction). It’s actually my mom’s aunt, who is in early stages of dementia, but has been lucid enough to come and bring her lunch and rub her feet a few times last week and was there to paint her toe nails the morning her water broke. It’s better than having to be at home 60 minutes away or staying in a foundation house where she would not be able to communicate easily with anyone. Thanks for letting me talk it all out and all of your support.
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Post by GhoatMonket on Sept 22, 2018 20:18:50 GMT -6
Can she get an Uber or Lyft to the NICU? Or, sometimes insurance will help cover rides to and fro. And sometimes the social worker can help with bus rides (if that’s an option, idk what public trans is like where she lives) or taxis. Or if people want to help you can recommend an Uber or Lyft gift card?? My heart hurts for all the moms who have trouble getting to and from the NICU to see their babies. ESP immediately post delivery when a lot of times you’re not even cleared to drive. Is staying at the NICU a possibility? At mine, parents can stay at the bedside 24/7. Not the most comfortable recliners but they open up so they can lay down fully. but we do offer it to them as well as three meals a day for pumping moms. I hope her place has something similar? Because of the spinal headache, they’re keeping her at the same hospital for at least a week. So it’s still a few days away from needing to totally figure it out. My great uncle is retired and lives one town over from the hospital, so would be her main (willing) transport. He also signs a little, and helped her a lot when she was at the school for the deaf in the same county. I know I was allowed to stay at mine, and fed, but yeah, that recliner would not have been comfortable at all after a c section. There’s a Ronald McDonald House, but it’s not on campus and she’s still have to rely on interpreters and bus transportation to get there. It will be okay, just more frustrating than if she could drive herself. I had an emergent VBAC, because nobody believed I was in labor (including myself) so I was cleared to drive after a few days and could just come and go as I pleased. The recliner was the best thing I had post c-section actually. Laying in bed or making to horrible mistake of laying down on the pull out in DS's NICU room hurt so much. And getting up was almost impossible. I'm glad she has some people willing to help her out.
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loony
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Post by loony on Sept 23, 2018 15:54:11 GMT -6
OMG you guys. I’m in love. *also amazing when you’re husband is a photographer. [\spoiler]
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rvasc
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Post by rvasc on Sept 23, 2018 16:23:31 GMT -6
That is one adorable baby!
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rvasc
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Post by rvasc on Sept 23, 2018 16:23:42 GMT -6
How’s your sister feeling?
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jabbers
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Post by jabbers on Sept 23, 2018 16:27:07 GMT -6
That is one ridiculously cute baby!
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loony
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Post by loony on Sept 23, 2018 16:28:51 GMT -6
How’s your sister feeling? She’s still in quite a bit of pain, but doing better.
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Post by goldenbird on Sept 23, 2018 16:33:47 GMT -6
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armpants
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Post by armpants on Sept 23, 2018 16:49:34 GMT -6
Well he is ridiculously adorable!
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jorkzy
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Post by jorkzy on Sept 23, 2018 17:05:25 GMT -6
SO cute!
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rayann
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Post by rayann on Sept 23, 2018 17:12:19 GMT -6
Aww, he is sooo cute! I am also keeping you in my thoughts as well, because I know it must be hard for you too.
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loony
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Post by loony on Sept 23, 2018 17:20:42 GMT -6
Aww, he is sooo cute! I am also keeping you in my thoughts as well, because I know it must be hard for you too. I feel exponentially better today. They’re healthy, they’re in the right place. I went and retail therapied in baby clothes...since her shower was supposed to be yesterday, she has very little since she was waiting. I also found my perfectly fine diaper bag and am going to stuff it full of clothes and send it down with SO next weekend. So at least there was SOMETHING I can do. My biggest hurdle now is to be the gentle voice of reason. She said they told her he would be home in 3 weeks, but we all know that feeling of false hopes being dashed. I just want to help her be less crushed if it is longer. There may be some language/interpreting lost in translation there. My DS was two weeks farther along and stayed 5 weeks, which she knows. I hope it’s sooner. For everyone’s sake, I do, but I just don’t want her to be defeated if it is longer.
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Post by thechickencoop on Sept 23, 2018 17:32:39 GMT -6
Oh those lips! He's beautiful!
Three weeks would be amazing! I feel like they always overestimate on stays so as to not get anyone's hopes up, so maybe it's a real possibility?! DS2 was born at 34+2 and only had a 6 day NICU stay even though they kept telling my it may be "weeks". I hope it's short!!!
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rayann
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Post by rayann on Sept 23, 2018 17:34:19 GMT -6
((Hugs)) I am hoping there is a short stay, but as you said, it is hard when you find out they have to stay longer. I am glad you were able to do something that made you happy.
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loony
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Post by loony on Sept 23, 2018 17:35:34 GMT -6
Oh those lips! He's beautiful! Three weeks would be amazing! I feel like they always overestimate on stays so as to not get anyone's hopes up, so maybe it's a real possibility?! DS2 was born at 34+2 and only had a 6 day NICU stay even though they kept telling my it may be "weeks". I hope it's short!!! They told me not to expect to go home before his due date, which would have been two weeks past when we left. So at least I had no false hopes. He was probably ready before then, but we had a nurse manufacture an “event” that wasn’t evident in any of the recordings (they record all monitors), but because she said it happened it was an automatic 7 day stay. 🙄 Our regular day nurse was pissed when they couldn’t corroborate.
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Post by thechickencoop on Sept 23, 2018 17:43:23 GMT -6
Oh those lips! He's beautiful! Three weeks would be amazing! I feel like they always overestimate on stays so as to not get anyone's hopes up, so maybe it's a real possibility?! DS2 was born at 34+2 and only had a 6 day NICU stay even though they kept telling my it may be "weeks". I hope it's short!!! They told me not to expect to go home before his due date, which would have been two weeks past when we left. So at least I had no false hopes. He was probably ready before then, but we had a nurse manufacture an “event” that wasn’t evident in any of the recordings (they record all monitors), but because she said it happened it was an automatic 7 day stay. 🙄 Our regular day nurse was pissed when they couldn’t corroborate. Wut. I...I'm not sure what I would have done in that situation. We had amazing nurses. The one that was my favorite seemed like she had been in the NICU forever. She kept looking DS up and down and waving her arms that he didn't need to be in here hooked up to everything. She had a thick accent and was just...ugh. the best at easing any anxiety we had.
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Post by earlybirdz on Sept 23, 2018 17:49:23 GMT -6
He’s adorable.
I’m sorry things are difficult right now. I know how hard it is to be stuck in the hospital and having to rely on everything. It sounds like you guys are a great support system.
Sending prayers and support that things go smoothly from here.
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loony
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Post by loony on Sept 23, 2018 17:52:32 GMT -6
They told me not to expect to go home before his due date, which would have been two weeks past when we left. So at least I had no false hopes. He was probably ready before then, but we had a nurse manufacture an “event” that wasn’t evident in any of the recordings (they record all monitors), but because she said it happened it was an automatic 7 day stay. 🙄 Our regular day nurse was pissed when they couldn’t corroborate. Wut. I...I'm not sure what I would have done in that situation. We had amazing nurses. The one that was my favorite seemed like she had been in the NICU forever. She kept looking DS up and down and waving her arms that he didn't need to be in here hooked up to everything. She had a thick accent and was just...ugh. the best at easing any anxiety we had. I pretty much lost it. Our day nurse was from England and called him her “little Sausage Link”. Link is also the Scandinavian diminutive for his full name. Thankfully we had a neonatologist who took it with a grain of salt and we literally left at the end of that 7 day period. That neonatologist also figured out that once he hit 36 weeks and they added cows milk based fortifier to my milk, he stopped taking bottles over night. He would nurse all day and would take unfortified bottles. He ended up being MPI like DD and so he let us nurse for 24 hours and he actually gained more than with fortified bottles. Who knows how long we would have been there if that Dr on call hadn’t put two and two together. I have so much mental trauma from that experience. I’m really just trying to keep my sister from having as much as I did. From the conversations my mom has had with her neonatologists, she’s in much better hands than I was.
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Post by thechickencoop on Sept 23, 2018 20:31:52 GMT -6
Oh loony, of course you know, but everyone's experience is different. Sounds like she's in good hands and hopefully has a great and compassionate NICU team.
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Taitai
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Post by Taitai on Sept 23, 2018 22:27:25 GMT -6
He’s so cute! Sending healthy thoughts and prayers for as short of a NICU stay as possible. 💕❤️
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teraiin
Amethyst
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Post by teraiin on Sept 24, 2018 5:24:02 GMT -6
Wut. I...I'm not sure what I would have done in that situation. We had amazing nurses. The one that was my favorite seemed like she had been in the NICU forever. She kept looking DS up and down and waving her arms that he didn't need to be in here hooked up to everything. She had a thick accent and was just...ugh. the best at easing any anxiety we had. I pretty much lost it. Our day nurse was from England and called him her “little Sausage Link”. Link is also the Scandinavian diminutive for his full name. Thankfully we had a neonatologist who took it with a grain of salt and we literally left at the end of that 7 day period. That neonatologist also figured out that once he hit 36 weeks and they added cows milk based fortifier to my milk, he stopped taking bottles over night. He would nurse all day and would take unfortified bottles. He ended up being MPI like DD and so he let us nurse for 24 hours and he actually gained more than with fortified bottles. Who knows how long we would have been there if that Dr on call hadn’t put two and two together. I have so much mental trauma from that experience. I’m really just trying to keep my sister from having as much as I did. From the conversations my mom has had with her neonatologists, she’s in much better hands than I was. Stuff like that is such a blow. Our baby b had his discharge papers written up and a nurse (who happened to mention to me that she didn’t feel like he was ready to go home) happened to test his glucose in the wee hours of the am before a feed and it was borderline low. Next thing I knew he was on a glucose drip (so then we couldn’t even verify if he was having issues maintaining glucose). I could never get a straight answer about why a test that everyone admitted wasn’t standard at his age was approved, who approved it, etc. he ended up not having an issue with his glucose and was able to go home but it took three weeks. Anyway 🤗 I’m glad she seems to be in good hands. NICU stuff is so rough. 😣
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