honda
Sapphire
Posts: 2,955 Likes: 13,425
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Post by honda on May 31, 2018 8:36:56 GMT -6
So my trip to Texas is in a couple of weeks and I'm ridiculously excited. We are going to meet other families of sma kids and there are going to be some great workshops.
Andplusalso, if you live in the Dallas area I'd love to meet you! I won't be venturing from my hotel since we won't have a car, but if you want to come grab a drink with me at the bar it would be so cool. Pm me if you'd like to coordinate something.*
*Skin-suits need not apply.
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bobyn
Diamond
local baby-making menace
Posts: 26,523 Likes: 164,464
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Post by bobyn on May 31, 2018 9:21:20 GMT -6
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Post by ellewoods on May 31, 2018 19:24:08 GMT -6
I’m so impressed with how far they’ve come in regards to spinraza... amazing
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honda
Sapphire
Posts: 2,955 Likes: 13,425
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Post by honda on Jun 1, 2018 6:02:35 GMT -6
I’m so impressed with how far they’ve come in regards to spinraza... amazing It's absolutely amazing! I can't wait to meet other families like ours!
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