mwhip
Opal
Posts: 9,174 Likes: 56,606
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Post by mwhip on Dec 4, 2020 21:02:21 GMT -6
I'm going to message evies rheumatologist this weekend and push for physical therapy. Her teacher sent me the below message and I almost cried. She said nothing before she left for school, so why is she telling her teacher more than me? Today Evie was telling me a few things that made me sad. She said, "I just don't like to run anymore, it hurts too much". "I woke up and my knee hurts bad today". "I want to not hurt anymore". I feel so sad for her.
Her teacher emails me to keep the communication open, which I'm glad for. But I feel so bad that I dont know these things.
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tgrimes
Diamond
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Post by tgrimes on Dec 4, 2020 21:50:28 GMT -6
mwhip Poor girl. I’m so sorry.
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klong11
Emerald
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Post by klong11 on Dec 4, 2020 22:04:17 GMT -6
Poor girl mwhip. Maybe she doesn't tell you because she's afraid she'll have to go to the Dr. again. PT might be a good idea. I hope they can recommend someone.
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wedding
Emerald
Posts: 14,402 Likes: 77,820
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Post by wedding on Dec 4, 2020 22:04:35 GMT -6
Aww mwhip I’m sorry she is still in so much pain and that she hasn’t told you. Maybe she’s trying to be brave for you or worried she will miss out on things? Lots of ❤️. I would have a hard time digesting that as well.
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Post by lahdeedah on Dec 4, 2020 22:50:07 GMT -6
Awww mwhip I’m sorry she is still in pain. I’m sure you will think of ways you can encourage her to share when she is hurting. Is she able to take any Tylenol or ibuprofen on the bad days?
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vino
Opal
Posts: 9,054 Likes: 56,450
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Post by vino on Dec 4, 2020 23:30:41 GMT -6
Oh mwhip that broke my heart, poor girl I hope that your able to get her into PT and it helps so she can start to feel better
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lfig
Sapphire
Posts: 4,459 Likes: 34,072
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Post by lfig on Dec 5, 2020 6:42:38 GMT -6
mwhip I’m so sorry she’s still struggling with pain. And that she hasn’t told you. I’m sure like others said, she is probably just trying to be brave, and afraid of not being able to go do things. Much love to you guys.
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Post by wineallthetime on Dec 5, 2020 6:43:25 GMT -6
Poor, E! mwhip. So sorry you guys are going through this. I wonder if it just hits her harder at school seeing all the other kids running/jumping/ect and it prompted her to tell her teacher how she was feeling.
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mwhip
Opal
Posts: 9,174 Likes: 56,606
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Post by mwhip on Dec 5, 2020 6:51:23 GMT -6
Awww mwhip I’m sorry she is still in pain. I’m sure you will think of ways you can encourage her to share when she is hurting. Is she able to take any Tylenol or ibuprofen on the bad days? She takes indomethacin twice a day already, which is an anti inflammatory. I can give her Tylenol, I've given it for headache before. wineallthetime I do think seeing all the other kids, doing normal kid things, is part of it. I posted about PT on a JIA FB page last night and a lot of parents recommend PT, said it helped there kids a lot. She woke me this morning at 630 in front of the toilet. So we are sitting in the hallway with Ritz crackers and water. I hate this for her.
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nam2013
Emerald
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Post by nam2013 on Dec 5, 2020 7:17:25 GMT -6
mwhip my heart breaks for you when reading that, I’m so sorry 😞. Hope the pt will help.
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Post by wineallthetime on Dec 5, 2020 7:24:38 GMT -6
Breaks my heart, I'm so sorry mwhip.
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Post by peachsmama on Dec 5, 2020 7:47:52 GMT -6
I hate that she's in pain mwhip. I agree with both klong11 and wedding. She hates the doctor so that may be why she's not telling you. But whatever the reason, it would be hard to digest. You're a great mom and you'll do anything you can to help her.
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jewels
Opal
Posts: 8,456 Likes: 44,438
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Post by jewels on Dec 5, 2020 9:37:21 GMT -6
Ugh sorry mwhip. Poor girl.
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inthekitty
Emerald
My eyes are up here.
Posts: 10,674 Likes: 69,736
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Post by inthekitty on Dec 5, 2020 10:06:49 GMT -6
Big hugs mwhip. I'm so sorry. Your poor girl. I hope her doc can come up with a tx plan that helps manage her pain better.
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inthekitty
Emerald
My eyes are up here.
Posts: 10,674 Likes: 69,736
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Post by inthekitty on Dec 5, 2020 10:09:39 GMT -6
Portrait of Pet Art shop on Etsy. linkI ended up just getting the digital image from the shop and ordered the canvas from Costco because I wasn't sure if the canvas would make it to me fast enough other wise. The guy was really quick with the digital image (maybe 1.5 days after I sent pictures). Thanks. Send me yours again if you don't mind. I'll show him and judge his reaction if I should buy one lol I hope he likes it. They're fun. (: I'm at my other job now so I can't upload it, but it was on the 3rd page of the Thursday thread.
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Post by peachsmama on Dec 5, 2020 11:22:56 GMT -6
Thanks. Send me yours again if you don't mind. I'll show him and judge his reaction if I should buy one lol I hope he likes it. They're fun. (: I'm at my other job now so I can't upload it, but it was on the 3rd page of the Thursday thread. Found it!
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trtlcrzy
Moderator
Posts: 10,085 Likes: 58,458
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Post by trtlcrzy on Dec 5, 2020 15:01:30 GMT -6
I’m sorry mwhip, that she’s in such pain and is keeping it from you. I hope a good talk will get her to open up and that the doc agrees to PT.
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