yummeecookee
Sapphire
Maker of November Babies
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Post by yummeecookee on May 24, 2019 6:20:51 GMT -6
I wanted to share with you guys that B was diagnosed w Lyme disease. I’m really devastated over it. My mind is going into all the worst what-if scenarios after watching mh still continue to struggle w it.
She’s on a 28 day course of abx rn and I’m just hoping/praying/pleading that this will take care of it all and we can move on and never look back.
Keep her in your thoughts but most importantly pls pls pls take the precautions if you live in an area of the country where this is prevalent. I pulled a tick about the size of a sesame seed off of her. I believe it had been there only about 24hrs.
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mwhip
Opal
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Post by mwhip on May 24, 2019 6:23:15 GMT -6
yummeecookee I'm so sorry you are going through this. Hopefully her symptoms are on the manageable side and the abx make her feel better. It seems really unfair that you have 2 people in your family learning how to live with this. Ticks are disgusting creatures.
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nam2013
Emerald
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Post by nam2013 on May 24, 2019 6:39:05 GMT -6
yummeecookee oh nooo. I’m so sorry. Ds has had many ticks and I’m so paranoid about them. Hope the antibiotics do there job.
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Post by wineallthetime on May 24, 2019 6:39:49 GMT -6
yummeecookee, oh my gosh. I'm so sorry. I hope the abx do the trick. How's she doing so far?
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Post by lahdeedah on May 24, 2019 6:41:33 GMT -6
Oh gosh. I am so sorry. I will send all my good energy and say a prayer for her. You caught it early and that is a good thing. I’m sending you internet hugs. It will be ok. You are probably a mess, but we will think positive thoughts and believe that it will be ok after the abx. Big hugs friend.
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Post by peachsmama on May 24, 2019 6:48:02 GMT -6
I'm so sorry. That is so terrible and seriously, wtf universe. 2 people in the same family, that's horrendous. Thinking of you all and hoping the abx do their job quickly!
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yummeecookee
Sapphire
Maker of November Babies
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Post by yummeecookee on May 24, 2019 6:50:49 GMT -6
yummeecookee, oh my gosh. I'm so sorry. I hope the abx do the trick. How's she doing so far? She seems ok. She isn’t having the telltale symptoms of joint pain, flu symptoms etc. (or if she is, then she’s not mentioning it). She had a huge rash develop where the bite was and she had complained was itchy. The latest symptom is a bit of facial palsy. One one side of her face, her mouth is kind of stuck. It’s not really bad, just makes it look kind of weird when she smiles. It’s also causing her eye to water more bc she can’t close it entirely. Her pedi is going to refer is to a ophthalmologist for that. |
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mwhip
Opal
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Post by mwhip on May 24, 2019 6:53:50 GMT -6
yummeecookee , oh my gosh. I'm so sorry. I hope the abx do the trick. How's she doing so far? She seems ok. She isn’t having the telltale symptoms of joint pain, flu symptoms etc. (or if she is, then she’s not mentioning it). She had a huge rash develop where the bite was and she had complained was itchy. The latest symptom is a bit of facial palsy. One one side of her face, her mouth is kind of stuck. It’s not really bad, just makes it look kind of weird when she smiles. It’s also causing her eye to water more bc she can’t close it entirely. Her pedi is going to refer is to a ophthalmologist for that. Poor thing, I hope the abx work quickly and she has no lasting side effects. |
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yummeecookee
Sapphire
Maker of November Babies
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Post by yummeecookee on May 24, 2019 6:54:14 GMT -6
I'm so sorry. That is so terrible and seriously, wtf universe. 2 people in the same family, that's horrendous. Thinking of you all and hoping the abx do their job quickly! Yes this is exactly how I feel! Like why, wtf. |
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cagoldi
Opal
Vegan Demon
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Post by cagoldi on May 24, 2019 7:06:54 GMT -6
I'm so sorry to hear this, yummeecookee. Hoping that the ABX do the trick and this will be behind her soon. Did your H ever get in to see that Lyme Specialist? Thinking of you and your family. |
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trtlcrzy
Moderator 
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Post by trtlcrzy on May 24, 2019 7:16:29 GMT -6
No! That isn’t fair, I’m so sorry. I hope the antibiotics take care of it and she doesn’t have any lasting effects.
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lfig
Sapphire
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Post by lfig on May 24, 2019 7:24:50 GMT -6
So sorry to hear this yummeecookee. Praying the abx do their job and she doesn’t have lasting effects. |
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nam2013
Emerald
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Post by nam2013 on May 24, 2019 7:38:20 GMT -6
They really really really should make a vaccin for this!!!
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tgrimes
Diamond
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Post by tgrimes on May 24, 2019 7:38:59 GMT -6
Shit yummeecookee! I'm so sorry. How long has she had the facial palsey? Did they say how long it should last? My dad's last bout of bells palsey never cleared up and he has to physically move the bottom of his lid up to shut it. It just constantly waters. They said they wouldn't do surgery until after 6 months and he's going on 9 months now. It's always a huge ordeal to get anything approved through his insurance. I'm sure B won't have that issue and I'm not trying to scare you but just wanted to give you a heads up. I like to know worst case scenarios. |
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wedding
Emerald
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Post by wedding on May 24, 2019 7:39:04 GMT -6
I'm so sorry. I hope the medicine works and she is better quickly.
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Post by snoopmommymom on May 24, 2019 7:48:22 GMT -6
Oh gosh I’m so sorry. Fortunately it sounds like she’s being treated pretty soon after the initial bite. How long after you took the tick off her did she start showing symptoms?
We have a lot of ticks around us. My friends have pulled some off their kids this year. This is a great reminder for all of us in the NE to check constantly.
What part of her body was it on?
2 years ago i found 2 on Omar. One was his inner thigh/groin area and the other was on his torso.
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yummeecookee
Sapphire
Maker of November Babies
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Post by yummeecookee on May 24, 2019 7:52:13 GMT -6
I'm so sorry to hear this, yummeecookee. Hoping that the ABX do the trick and this will be behind her soon. Did your H ever get in to see that Lyme Specialist? Thinking of you and your family. He did. She is the one that ordered the PICC line for him. She said that the abx have done all they can and anymore abx would be ineffective. So at this point it’s about lifestyle management and dealing w any residual symptoms. She sent him on to a neurologist who ordered a MRI (which he should be having rn) so they can assess what sort of damage he’s had to his nervous system and what would be the course of action to manage that. It’s really unbelievable. All this fucking ordeal from a tick bite. |
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yummeecookee
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Maker of November Babies
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Post by yummeecookee on May 24, 2019 7:55:24 GMT -6
tgrimes - thank you for sharing that info. I’ve been spiraling on it. It started on Wed afternoon. Her dr thought it may go away in about 2 mo. I’m not sure what he’s basing that on but I hope he’s right. The internet was telling me 2 years!
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yummeecookee
Sapphire
Maker of November Babies
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Post by yummeecookee on May 24, 2019 7:57:56 GMT -6
Oh gosh I’m so sorry. Fortunately it sounds like she’s being treated pretty soon after the initial bite. How long after you took the tick off her did she start showing symptoms? We have a lot of ticks around us. My friends have pulled some off their kids this year. This is a great reminder for all of us in the NE to check constantly. What part of her body was it on? 2 years ago i found 2 on Omar. One was his inner thigh/groin area and the other was on his torso. It’s terrifying! They’re everywhere now. I found hers behind her ear. I thought it was a skin tag initially bc it was so small! The rash started after about 1.5 weeks. We never saw the one that infected mh. |
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tgrimes
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Post by tgrimes on May 24, 2019 7:58:22 GMT -6
tgrimes - thank you for sharing that info. I’ve been spiraling on it. It started on Wed afternoon. Her dr thought it may go away in about 2 mo. I’m not sure what he’s basing that on but I hope he’s right. The internet was telling me 2 years! My dad has had bells palsey 4 times now. I'm not sure how different it is compared to what B is experiencing, but usually his face is back to normal around 6 weeks. The doctors tell him between 2-3 months. |
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tallb
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Post by tallb on May 24, 2019 8:36:47 GMT -6
Oh gosh, what a mess, I'm so sorry. I am glad you caught it early and abx are started.
My step uncle is a naturopath and there is some antidote or something out there, I know it's a bit whacky, but if you want a second opinion I could pass along his info. My dad claims it cured his, but who knows, Lyme is so elusive.
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cagoldi
Opal
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Post by cagoldi on May 24, 2019 8:47:18 GMT -6
Oh gosh, what a mess, I'm so sorry. I am glad you caught it early and abx are started. My step uncle is a naturopath and there is some antidote or something out there, I know it's a bit whacky, but if you want a second opinion I could pass along his info. My dad claims it cured his, but who knows, Lyme is so elusive. From what I've gathered, there's still some debate as to whether or not chronic Lyme even exists. But it is definitely having a long-term effect on some people even if mainstream medicine currently denies this diagnosis. If it were me, I would try woo woo alternatives as long as they aren't harmful or gross. Can't hurt, might help. 🤷♀️ |
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yummeecookee
Sapphire
Maker of November Babies
Posts: 3,133 Likes: 19,748
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Post by yummeecookee on May 24, 2019 9:02:02 GMT -6
Oh gosh, what a mess, I'm so sorry. I am glad you caught it early and abx are started. My step uncle is a naturopath and there is some antidote or something out there, I know it's a bit whacky, but if you want a second opinion I could pass along his info. My dad claims it cured his, but who knows, Lyme is so elusive. Yes, pls PM me. Mh would prolly be willing to try. |
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guster
Emerald
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Post by guster on May 24, 2019 9:06:58 GMT -6
I’m so sorry. I hope one course of abx does the trick af she feels well during all of it.
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vino
Opal
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Post by vino on May 24, 2019 11:34:58 GMT -6
Oh my goodness, I'm so sorry. I hope the abx works quickly, allowing her to heal and feel better soon. Poor girl  |
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klong11
Ruby
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Post by klong11 on May 24, 2019 12:13:22 GMT -6
Oh no! I hope the antibiotics help!
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joelies
Sapphire
You must chill
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Post by joelies on May 24, 2019 12:20:50 GMT -6
Poor thing! I hope the abx take care of it and the facial palsy goes away quickly!
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tallb
Amethyst
Posts: 5,339 Likes: 33,900
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Post by tallb on May 24, 2019 13:22:16 GMT -6
Oh gosh, what a mess, I'm so sorry. I am glad you caught it early and abx are started. My step uncle is a naturopath and there is some antidote or something out there, I know it's a bit whacky, but if you want a second opinion I could pass along his info. My dad claims it cured his, but who knows, Lyme is so elusive. Yes, pls PM me. Mh would prolly be willing to try. just sent! |
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slenle
Sapphire
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Post by slenle on May 24, 2019 21:30:36 GMT -6
Oh gosh, I’m so sorry. I hope the abx work quickly and her symptoms don’t last long.
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chrisy01
Emerald
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Post by chrisy01 on May 25, 2019 6:07:03 GMT -6
@slene I’m so sorry. Hopefully the antibiotics quickly
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