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Post by sarahwithanh on Apr 22, 2019 20:21:01 GMT -6
Another one dealing with doctors this week. Ms gtube has been having a lot of infection issues and we have to figure out what to do with it. We have been on too many antibiotics lately and it's not really getting better. So we deal with that tomorrow. not good. Do you know what your options are? Well they most likely will do another antibiotic and change out the tube but we need to get a better agreement as to what we do going forward. We can't do continuous antibiotics
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waitwhat
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Post by waitwhat on Apr 23, 2019 5:26:08 GMT -6
Im sorry Cheshie6 ! I hope they re able to figure it out soon to give that poor boy some relief!
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Cheshie6
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Post by Cheshie6 on Apr 23, 2019 6:32:07 GMT -6
I slept very little last night, trying to prevent L from scratching to no avail! It was his ankles or his hands... he makes himself bleed!?! We’ll see a pediatrician (not our’s) today at 10:30.
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tgrimes
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Post by tgrimes on Apr 23, 2019 7:12:02 GMT -6
When I arrived at my in laws' house yesterday, my MIL was still at her dr's appt. H ran to give me a hug and he felt warm. Temp was 103. So my MIL is watching him for me again today. He was still sleeping when I left but she said he woke up without a fever. Hopefully it stays that way.
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waitwhat
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Post by waitwhat on Apr 23, 2019 7:18:26 GMT -6
B just had a speech lesson. His therapist told me she thinks he’s just about ready to be discharged.. I’m shocked! She was really anxious to see if he would show any signs of regression since we had a week off but she said he didn’t. She is really thrilled with his progress and he has met all his goals at home with our sessions. We have a meeting at the end of May with the school district to discuss summer and school year plans. She thinks we will drop the sessions for the summer but continue in the school year and do them at school, which I’m actually pushing for. He tends to clam up and be super shy at school so I want to get him seen at school instead of the sessions at home, which he’s super comfortable for and does great with. I’m so proud of him! He’s come such a long way!
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tgrimes
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Post by tgrimes on Apr 23, 2019 7:47:51 GMT -6
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tgrimes
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Post by tgrimes on Apr 23, 2019 8:14:29 GMT -6
Well, I finally got smart. I sent MH a link to shoes I wanted for mother's day and told him to buy them today since they're on sale. It's the only way to assure that I don't receive another lazy susan.
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starbuck
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Post by starbuck on Apr 23, 2019 8:14:49 GMT -6
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starbuck
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Post by starbuck on Apr 23, 2019 8:17:56 GMT -6
They are running approx 8,000 tests. And the lab woman blew my vein. She said the vein moved when she stuck in the needle, so of course she then dug the needle around trying to re-tap it before giving up and moving to the other arm. And definitely bruised the second arm, too. Awesome.
Anyways, a few days wait for all the results.
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Post by sarahwithanh on Apr 23, 2019 11:35:33 GMT -6
starbuck hoping for easy to treat answers. Our doctor apt was annoying. His gtube site may just be due to th combo of eczema/super sensitive, colds, and an open wound essentially. Which I don't disagree with but she didn't have any new ideas on how we should treat and we can't keep doing rounds upon rounds of antibiotics so I dont know what to do. Other tubie parents think I should get a second opinion from a private practice.
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elle
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Post by elle on Apr 23, 2019 13:19:46 GMT -6
waitwhat - fantastic news! tgrimes - I wanna see the shoes (also, smart move for sure). starbuck - ouch, I'm sorry. sarahwithanh - how incredibly frustrating. It sounds like a second opinion might be a good idea.
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tgrimes
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Post by tgrimes on Apr 23, 2019 13:44:35 GMT -6
elle They're nothing fancy. They're on sale for $30 today and my current sperrys have seen better days.
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waitwhat
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Post by waitwhat on Apr 23, 2019 13:51:44 GMT -6
I love them tgrimes . I have two pairs similar.. one black and one nude colored. They are my favorite shoes to wear.
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tgrimes
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Post by tgrimes on Apr 23, 2019 14:13:56 GMT -6
I love them tgrimes . I have two pairs similar.. one black and one nude colored. They are my favorite shoes to wear. I have a blue pair that I like and then I got a gray fabric pair. I like them better than the Toms Avalon shoes. These are a lilac so I'm interested to see the color. They have free returns though so if I don't like them I"ll return them for the gray.
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Cheshie6
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Post by Cheshie6 on Apr 23, 2019 16:52:16 GMT -6
GL @ Starbucks! I hope they find what’s wrong. Yay B waitwhat! How exciting! tgrimes, I love those shoes but never pull the trigger on buying lol. I end up going back to my adidas Superstars. L is just having a bad eczema flare. The medicine the doctor at urgent care gave him lasts for 3 days, and the pediatrician gave us an antibiotic to make sure it doesn’t get infected. I’m not sure what to do with him tomorrow. He has speech playgroup and I have work tomorrow afternoon, would you bring him to playgroup?
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danib
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Post by danib on Apr 23, 2019 17:09:14 GMT -6
Cheshie6 since an eczema flare isn't contagious I would base it 100% on his mood. If he's miserable then I'd keep him home. Otherwise I'd take him as it might be a good distraction for him.
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hangry
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Post by hangry on Apr 23, 2019 18:41:10 GMT -6
Yay for eczema flare ups? sarahwithanh and Cheshie6 This doesn’t quite sound right, but the alternative of infection and allergic reaction seems like eczema might be a win. Hope they both clear up soon. And Sarah, if you’re unsure, trust your gut and get a 2nd opinion! Congrats B!!! waitwhatGood idea tgrimes. My bday is right around mother’s day so I should really put some thought into what to tell MH to buy me.
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waitwhat
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Post by waitwhat on Apr 24, 2019 8:36:18 GMT -6
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Post by jubilantsquirrel on Apr 24, 2019 8:42:40 GMT -6
I regret to inform you that JubilantSquirrel's head exploded due to all the impressively dumb people she has to interact with on a daily basis.
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Post by jubilantsquirrel on Apr 24, 2019 8:45:39 GMT -6
On a positive note, I had requested a half for day today because we were supposed to have a meeting at Jonah's school with the psychologist. We thought it was about transitioning to kindergarten, but apparently it's just to get consent to re-evaluate him. Which we already signed a release last month for that. So meeting cancelled, but I'm still taking my half day and just not telling anyone. Two hours and 15 minutes until I get some much needed alone time!!
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tgrimes
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Post by tgrimes on Apr 24, 2019 8:50:35 GMT -6
On a positive note, I had requested a half for day today because we were supposed to have a meeting at Jonah's school with the psychologist. We thought it was about transitioning to kindergarten, but apparently it's just to get consent to re-evaluate him. Which we already signed a release last month for that. So meeting cancelled, but I'm still taking my half day and just not telling anyone. Two hours and 15 minutes until I get some much needed alone time!! That sounds divine.
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tgrimes
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Post by tgrimes on Apr 24, 2019 8:53:08 GMT -6
Hi. I'm tgrimes. I'm the most annoying parent on the planet right now. The pedi's office can't do an ear culture and the only person that can schedule same day appts for the ENT is the nurse, whom I've already left a message for this morning. So I will continue to call the ENT's office for the next 1.5 hours until my luncheon to try and speak to her on the phone, as I really do not want my child to have to wait another day to start the antibiotic ear drops...
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Post by jubilantsquirrel on Apr 24, 2019 8:58:42 GMT -6
Hi. I'm tgrimes. I'm the most annoying parent on the planet right now. The pedi's office can't do an ear culture and the only person that can schedule same day appts for the ENT is the nurse, whom I've already left a message for this morning. So I will continue to call the ENT's office for the next 1.5 hours until my luncheon to try and speak to her on the phone, as I really do not want my child to have to wait another day to start the antibiotic ear drops... It really shouldn't come down to this. This is beyond frustrating. I am sorry. I hope they back to you ASAP so you can get H the meds he needs.
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danib
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Post by danib on Apr 24, 2019 9:21:33 GMT -6
Everything is frozen here today. Like icicles hanging off trees and cars and having to scrape the windows before driving. I haven't been able to work out all week. And won't tomorrow either because my niece is coming for a sleep over tonight.
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tgrimes
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Post by tgrimes on Apr 24, 2019 9:23:34 GMT -6
They can't get me in today. Well, they could do it at 1:30 but I won't be able to make it there in time. I'm so fucking pissed right now. Yes, please make my child wait until the 3rd day of his EI to get seen. The nurse (for a different doctor) said it would be fine to wait another day. ARE YOU FUCKING KIDDING ME LADY? My kid is miserable and I can't start the fucking drops until this culture is done. Yes, please make him wait another 24 hours.
I'm fighting back tears right now.
You better believe the ENT will be hearing an EARFUL tomorrow.
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Post by jubilantsquirrel on Apr 24, 2019 9:26:52 GMT -6
Jesus tgrimes. I am so angry for you!! How dare the nurse say it's ok for H to wait another day. What a bitch.
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waitwhat
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Post by waitwhat on Apr 24, 2019 9:28:24 GMT -6
Omg tgrimes I’m livid for you. It shouldn’t be this difficult. I’m so sorry.
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waitwhat
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Post by waitwhat on Apr 24, 2019 9:30:11 GMT -6
On a positive note, I had requested a half for day today because we were supposed to have a meeting at Jonah's school with the psychologist. We thought it was about transitioning to kindergarten, but apparently it's just to get consent to re-evaluate him. Which we already signed a release last month for that. So meeting cancelled, but I'm still taking my half day and just not telling anyone. Two hours and 15 minutes until I get some much needed alone time!! ENJOY!!
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tgrimes
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Post by tgrimes on Apr 24, 2019 9:32:15 GMT -6
Jesus tgrimes . I am so angry for you!! How dare the nurse say it's ok for H to wait another day. What a bitch. I even told her he's had a fever since Sunday and he's miserable. I asked her if it was her kid if she would wait another day. I really home my doctor's nurse returns my call today so I can complain.
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danib
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Post by danib on Apr 24, 2019 10:06:24 GMT -6
tgrimes that's absolutely rediculous and unacceptable. I don't know how your medical system works, but is there an urgent care or anything like that that could do the culture?
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