Winter Wednesday

[mwhip]

I think I'm worried about it because for Halloween, we probably had the most under-involved treat for her classroom and I don't want to do that again. I like the card with lollipop idea, especially if it can come from the dollar store!

[mwhip]

Jan 30, 2019 9:36:29 GMT -6 klong11 said:

mwhip , I'll have mh draw them up and send the file to me, then I'll just print them on cardstock here at work. I can send you the file after he does it, if you want.

That would be awesome!  Thanks!

[klong11]

Jan 30, 2019 9:37:14 GMT -6 mwhip said:

Jan 30, 2019 9:36:29 GMT -6 klong11 said:

mwhip , I'll have mh draw them up and send the file to me, then I'll just print them on cardstock here at work. I can send you the file after he does it, if you want.

That would be awesome!  Thanks!

no problem

[tallb]

Hi! Stay warm everyone! We have our last day at Disneyland today and are so so tired. Apparently I should have been working out to prepare for this, it's exhausting. Fascinating people watching though. J it's loving some bigger kid rides and n is having fun too.

[tgrimes]

Jan 30, 2019 9:36:29 GMT -6 klong11 said:

mwhip , I'll have mh draw them up and send the file to me, then I'll just print them on cardstock here at work. I can send you the file after he does it, if you want.

Please send them to me, too!  I have a crap load of card stock leftover from the baby shark cake topper.

[csho]

Jan 30, 2019 8:54:26 GMT -6 tgrimes said:

csho Are we going to get an update about your life? What happened after your IUD exploded?

Oh yeah. I went to a specialist at Mayo, they said the IUD fragment is embedded in a place where removing it carried too great a risk for permanent damage. The remaining piece is inert, I can live with it so long as I don't develop chronic pain. If I become pregnant in the future, I will need extra monitoring. The end. Don't get an IUD.

[csho]

Jan 30, 2019 8:35:09 GMT -6 tgrimes said:

Jan 30, 2019 8:33:28 GMT -6 csho said:

You guys.

Lol.

Hi!!!!!!

Hey girl hey.

[cagoldi]

Jan 30, 2019 7:32:33 GMT -6 wedding said:

How did your crazy day turn out yesterday cagoldi?

Pretty good thanks to my mom and sister.

I also got the good news that Pete will be WAH permanently, so that helps a lot. He wants me to take the next two-three years off work until X is in public full-time and I am seriously considering it. I think the only question at this point is whether I give my notice now or wait until the end of the year so he can add me to his insurance during open enrollment.

I’ve also got my own healthcare services continuity piece to figure out.

The SW said we’ll be in touch again Friday or early next week, and at that time she will advise me of what they determined as far as his delays (initially it sounds like she said (speech, social, gross/fine motor), how often he needs services, etc.

And then I guess they develop some kind of Family Service Plan that is supposed to be somewhat comprehensive.

She left me a bunch of stuff to look over re: parenting special needs kids.

So, things are moving kind of fast but I’m still feeling like there’s more I need to do but I don’t know what?

[csho]

Jan 30, 2019 8:45:30 GMT -6 guster said:

csho , lol!! Welcome back!!

guster, what's up with you?

[csho]

Jan 30, 2019 8:46:26 GMT -6 nam2013 said:

csho 😂😂😂 & also hi!

nam2013, tell me everything. What's up?

[csho]

Jan 30, 2019 8:51:45 GMT -6 klong11 said:

csho

Nothing much homegirl.

Attachment Deleted

[snoopmommymom]

cagoldi If you quit your job and lose your current health insurance, you don’t need to wait until open enrollment to sign up for Pete’s because you have a qualifying event. His insurance will ask for a letter from your insurance stating the termination date and that’s all you’ll need to sign up mid-year.

[csho]

Jan 30, 2019 9:52:12 GMT -6 cagoldi said:

Jan 30, 2019 7:32:33 GMT -6 wedding said:

How did your crazy day turn out yesterday cagoldi ?

Pretty good thanks to my mom and sister.

I also got the good news that Pete will be WAH permanently, so that helps a lot. He wants me to take the next two-three years off work until X is in public full-time and I am seriously considering it. I think the only question at this point is whether I give my notice now or wait until the end of the year so he can add me to his insurance during open enrollment.

I’ve also got my own healthcare services continuity piece to figure out.

The SW said we’ll be in touch again Friday or early next week, and at that time she will advise me of what they determined as far as his delays (initially it sounds like she said (speech, social, gross/fine motor), how often he needs services, etc.

And then I guess they develop some kind of Family Service Plan that is supposed to be somewhat comprehensive.

She left me a bunch of stuff to look over re: parenting special needs kids.

So, things are moving kind of fast but I’m still feeling like there’s more I need to do but I don’t know what?

Obviously I'm late on this. What's going on cagoldi ? I remember that initially overwhelming feeling of there's so much to do but I don't know where to start. We have been doing a subset of Speech, OT, PT, Feeding, and social skills therapies for years. Let me know if there's something I can help with.

[cagoldi]

Jan 30, 2019 10:06:27 GMT -6 csho said:

Jan 30, 2019 9:52:12 GMT -6 cagoldi said:

Pretty good thanks to my mom and sister.

I also got the good news that Pete will be WAH permanently, so that helps a lot. He wants me to take the next two-three years off work until X is in public full-time and I am seriously considering it. I think the only question at this point is whether I give my notice now or wait until the end of the year so he can add me to his insurance during open enrollment.

I’ve also got my own healthcare services continuity piece to figure out.

The SW said we’ll be in touch again Friday or early next week, and at that time she will advise me of what they determined as far as his delays (initially it sounds like she said (speech, social, gross/fine motor), how often he needs services, etc.

And then I guess they develop some kind of Family Service Plan that is supposed to be somewhat comprehensive.

She left me a bunch of stuff to look over re: parenting special needs kids.

So, things are moving kind of fast but I’m still feeling like there’s more I need to do but I don’t know what?

Obviously I'm late on this. What's going on cagoldi ? I remember that initially overwhelming feeling of there's so much to do but I don't know where to start. We have been doing a subset of Speech, OT, PT, Feeding, and social skills therapies for years. Let me know if there's something I can help with.

Okay, firstly, I love that your reappearance included information about the state of drinking establishments. Tres important.

So Xander has been in feeding therapy for about six months now and we’re seeing some very slow progress. He’s now 2.5 and speech and social skills are definitely not typical. He was recently diagnosed with developmental dyspraxia and we are waiting for an ADOS to either r/o or confirm ASD.

Can I ask what diagnosis they gave V?

As for my healthcare continuity, I’m getting infusions every four weeks that are $$$$$ and my Immunologist is OON with practically everyone so while I know it can be done, transferring everything to Pete’s HMO is probably going to be a major headache.

[cagoldi]

Jan 30, 2019 10:01:02 GMT -6 snoopmommymom said:

cagoldi If you quit your job and lose your current health insurance, you don’t need to wait until open enrollment to sign up for Pete’s because you have a qualifying event. His insurance will ask for a letter from your insurance stating the termination date and that’s all you’ll need to sign up mid-year.

Ah, I thought I would have to do Cobra. Good to know, thanks so much.

[lfig]

Last night MH and I talked about what the doctor said yesterday as far as our options and moving towards helping S regain better use of her hands again. One of the options he gave us was starting the IVIG therapy but also moving forward with a surgery consult, just to get that ball rolling. I think we decided to do this. Because it may be three months before we know if the infusions are helping and if we wait till then to request the surgery consult then who knows how much longer to get that ball rolling. So we are going to start that process also but not move forward with a surgery until we know if the infusions have worked or not. Because at this point it has been 5 months for her right hand of very limited use and a month of the left hand.

[joelies]

I had to do a bunch of weight-bearing x-rays and the doctor has no concern about my healing, so no surgery!! He apparently had another runner with a very similar fracture ASK for surgery because she heard it would speed up her return to running by a few weeks, so he did say we could consider it if I wanted. No thanks, I'm good. As it is, I can do as much in the way of movement exercises as possible without pain and can start putting weight on it to the extent it doesn't hurt. I could possibly be walking short distances without the boot within a couple weeks, the YMMV and all that. It was all positive anyhow, and Colin was excited to see the x-rays. So yay!!


And hiya csho!!

[flamingo]

mwhip I bought the cellophane treat bags and we’re doing a card, a couple candy items, a bouncey ball for B’s classmates, and bubbles for C’s (courtesy of the $1-3 section at Target). In the past I’ve done candy attached to the basic cards.

[joelies]

I'm glad you guys have a decent game plan given the lack of specificity you've been dealing with as far as diagnosing the issue, lfig. I can't imagine how frustrating it's been but S is lucky to have you guys in her corner.

[cagoldi]

Glad to hear surgery won’t be necessary, joelies.

That sounds like a good plan, lfig.

[lfig]

Yay for no surgery joelies!! And how fun for C to get to tag along and see that!

[csho]

Jan 30, 2019 10:12:27 GMT -6 cagoldi said:

Jan 30, 2019 10:06:27 GMT -6 csho said:

Obviously I'm late on this. What's going on cagoldi ? I remember that initially overwhelming feeling of there's so much to do but I don't know where to start. We have been doing a subset of Speech, OT, PT, Feeding, and social skills therapies for years. Let me know if there's something I can help with.

Okay, firstly, I love that your reappearance included information about the state of drinking establishments. Tres important.

So Xander has been in feeding therapy for about six months now and we’re seeing some very slow progress. He’s not 2.5 and speech and social skills are definitely not typical. He was recently diagnosed with developmental dyspraxia and we are waiting for an ADOS to either r/o or confirm ASD.

Can I ask what diagnosis they gave V?

As for my healthcare continuity, I’m getting infusions every four weeks that are $$$$$ and my Immunologist is OON with practically everyone so while I know it can be done, transferring everything to Pete’s HMO is probably going to be a major headache.

That sounds really similar to V actually. He is sub-threshold for Autism, we have been assessed multiple times but he does not meet the criteria for diagnosis. Because diagnostic criteria changed in the DSM, there really isn't a diagnosis for children like V. He's sitting at "non-categorical delay" or "delay not otherwise specified".

We also were hitting a wall at 2.5 years with speech. We switched gears and focused on intensive feeding therapy and oral motor exercises. A lot of people, even doctors and therapists, don't realize that low muscle tone can be a problem in the mouth. We actually had to build muscle in his mouth before he could speak. So that was something that helped both speech and feeding at the same time, very beneficial.

We also do social coaching and hand strengthening with OT. We have graduated from PT and feed therapy now. V is a lot more like his typically developing peers now that he's 5 because of all of the therapy hours and carry-over at home we're done since be was 18 mos.

cagoldi I added stuff

[joelies]

Jan 30, 2019 10:23:16 GMT -6 lfig said:

Yay for no surgery joelies !! And how fun for C to get to tag along and see that!

It probably wasn't well thought out - he'd probably be scared if I'd received bad news and started sobbing!!

[nam2013]

And ds just threw up everywhere... on the couch, on the floor, on a book, on me, himself... and this mother of the year got mad because there was a bucket two inches away from him. And then I cried because I got mad, WTH. Luckily my mom stopped by unexpectedly and helped me clean up. All of us are snuggling on the couch.

[cagoldi]

Jan 30, 2019 10:26:12 GMT -6 csho said:

Jan 30, 2019 10:12:27 GMT -6 cagoldi said:

Okay, firstly, I love that your reappearance included information about the state of drinking establishments. Tres important.

So Xander has been in feeding therapy for about six months now and we’re seeing some very slow progress. He’s not 2.5 and speech and social skills are definitely not typical. He was recently diagnosed with developmental dyspraxia and we are waiting for an ADOS to either r/o or confirm ASD.

Can I ask what diagnosis they gave V?

As for my healthcare continuity, I’m getting infusions every four weeks that are $$$$$ and my Immunologist is OON with practically everyone so while I know it can be done, transferring everything to Pete’s HMO is probably going to be a major headache.

That sounds really similar to V actually. He is sub-threshold for Autism, we have been assessed multiple times but he does not meet the criteria for diagnosis. Because diagnostic criteria changed in the DSM, there really isn't a diagnosis for children like V. He's sitting at "non-categorical delay" or "delay not otherwise specified".

We also were hitting a wall at 2.5 years with speech. We switched gears and focused on intensive feeding therapy and oral motor exercises. A lot of people, even doctors and therapists, don't realize that low muscle tone can be a problem in the mouth. We actually had to build muscle in his mouth before he could speak. So that was something that helped both speech and feeding at the same time, very beneficial.

We also do social coaching and hand strengthening with OT. We have graduated from PT and feed therapy now. V is a lot more like his typically developing peers now that he's 5 because of all of the therapy hours and carry-over at home we're done since be was 18 mos.

cagoldi I added stuff

Thanks so much.

That must be so frustrating not having anything concrete to go on. We’re definitely dealing with hypotonia, too, and that is certainly part of the problem with eating and speech.

I’m glad to hear that you are seeing so much improvement!

[vino]

You've got a lot on your plate cagoldi, but it's great that you and Pete are working together to come up with solutions for the family, short and long term.

That sounds like a good plan lfig, get both things on the go to maximize her success.

Yay for no surgery! joelies

[guster]

I’m glad there are options, lfig.
Yay for no surgery, joelies!

[guster]

Would your company hold your job for you, cagoldi?
@nam, oh no!!!

[guster]

I shoveled the deck; I probably shouldn’t have but it was nice to be outside in the fresh air.

[lahdeedah]

Morning! You gals are chatty today!

nam2013 Sorry the kids aren’t well. Take it easy on yourself. I did the same with M last week and felt horrible, too. It can be frustrating.

csho Hey girl, hey! Glad to hear you are not an ice cube. Stay warm!

kim22 Hope you get good news!

mwhip for the past two years, I have gotten the air head valentines. It comes with cards and you stick a bite sized airhead in the slit. Good enough and maybe $3 for 25!

cagoldi Good to hear you all are going through your options to figure out what is best for you and your family. You all will figure it out soon enough.