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Post by librarylady on Oct 4, 2017 11:55:58 GMT -6
I need to do laundry too, it never goes away! We need laundry machines where once the hamper hits critical mass, the bottom falls out and the machine washes, dries, then folds the clothes. This would be worth good good money. This is genius. Folding laundry just may be my least favorite chore.
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Post by CestLaVie on Oct 4, 2017 12:12:34 GMT -6
librarylady, same. I pump it out and then end up with a ginormous pile of clean clothes that takes an hour to fold.
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jedi
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Post by jedi on Oct 4, 2017 12:52:33 GMT -6
I’m sorry I’ve been such a negative Nancy lately. But I continue to feel defeated. More dark language yesterday according to Isaacs spec ed teacher. He was extremely challenging yesterday. I finally called the county to see if they can help us find a way to get OT outside of the school. Sounds like for our situation we’d beed medical assistance which my H makes to much for us to qualify. There’s another insurance called tefra as an option that they are going to send me paperwork on. Buy a simple google search makes me believe that we won’t qualify. It sounds like you only qualify if you need help caring for your child inside the home. Which we don’t. He of course can not be at school without support. So maybe he can? By “support” is subjective. So I don’t know. I’m also trying to figure out how much his therapy sessions will be but insurance hasn’t processed he claims and so they can’t tell me, they can’t even tell me if it’s a copay or an outpatient office visit. Right now they’ll be about the same but come Jan (new deductible yr) the difference is probably over 100. The therapy place told me to call the insurance company. I’m sure when I call them they’ll tell me to call the therapy place.
Several people have told me about the PACER center which is suppose to help parents who have kids with special needs. I’ve left them a message.
Silver lining.... maybe..... H had an interview Monday. They called yesterday and he couldn’t answer (at work) so maybe this whole mess will change soon. He was suppose to call them back this morning. (Pdq)
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jedi
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Post by jedi on Oct 4, 2017 12:55:21 GMT -6
It’s like my kitty knew I needed some love.. as I typed this she jumped on my lap and snuggled me.
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jedi
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Post by jedi on Oct 4, 2017 12:56:00 GMT -6
I also think I know what I want to be when I grow up. I want to help special needs parents navigate this kinda crap.
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jedi
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Post by jedi on Oct 4, 2017 13:24:42 GMT -6
Well the insurance company was useless. I got really mean then hung up on them. Ooops.
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Post by CestLaVie on Oct 4, 2017 13:27:59 GMT -6
jedi, I'm sorry this is all so hard and frustrating. I wish there were easier answers but I do admire you for advocating so strongly for your DS. I hope the PACER center gets back to you and has some ideas about how to move forward.
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Post by skinandbones on Oct 4, 2017 13:54:42 GMT -6
I also think I know what I want to be when I grow up. I want to help special needs parents navigate this kinda crap. Is there a local mental health clinic you could access so you can get a case worker? In my state they are called community service boards.
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jedi
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Post by jedi on Oct 4, 2017 13:58:36 GMT -6
I also think I know what I want to be when I grow up. I want to help special needs parents navigate this kinda crap. Is there a local mental health clinic you could access so you can get a case worker? In my state they are called community service boards. I did call the county and I might get some help with that there but that might just be for the tefra thing I mentioned. But this pacer group might be able to help me with navigating this
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Post by skinandbones on Oct 4, 2017 14:06:20 GMT -6
Is there a local mental health clinic you could access so you can get a case worker? In my state they are called community service boards. I did call the county and I might get some help with that there but that might just be for the tefra thing I mentioned. But this pacer group might be able to help me with navigating this Honestly, I would try both routes. The more people the better. It's a really confusing system. My state has been working on increasing access to services but funding is sorely lacking. As a case worker, I would do my best to patch stuff together but it wasn't perfect. My experience is with adults so I'm not as familiar with children. Is DS1 on the spectrum? I'm sorry. I can't remember. You could also call whatever your local autism society is.
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jedi
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Post by jedi on Oct 4, 2017 14:14:26 GMT -6
I did call the county and I might get some help with that there but that might just be for the tefra thing I mentioned. But this pacer group might be able to help me with navigating this Honestly, I would try both routes. The more people the better. It's a really confusing system. My state has been working on increasing access to services but funding is sorely lacking. As a case worker, I would do my best to patch stuff together but it wasn't perfect. My experience is with adults so I'm not as familiar with children. Is DS1 on the spectrum? I'm sorry. I can't remember. You could also call whatever your local autism society is. He’s never been tested. They say he’s likely not due to his eye contact and that he’s social. He has a diagnosis of ADHD and SPD. But i personally don’t think some of what we see is normal for a 5 yr old. Like tantrums and meltdowns. They happen weekly. And he’s not spoiled, at least imo. They are having the gifted teacher meet with him. But they do that for all kinder kids. His memory is pretty amazing though. Part of me wants to get a full testing done (the kind that take hours) so we can make sure we are not missing anything but I know the cost would be a lot. No way our shit insurance would cover it.
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Post by skinandbones on Oct 4, 2017 14:25:28 GMT -6
jedi, does the school do testing? I would apply for everything- insurance, services, whatever. I would apply even if you don't think you qualify. You just never know. Sometimes even if there is an income requirement, it so fucking convoluted it's confusing. I don't trust what they put out on the internet when it comes to that stuff.
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jedi
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Post by jedi on Oct 4, 2017 14:30:01 GMT -6
jedi, does the school do testing? I would apply for everything- insurance, services, whatever. I would apply even if you don't think you qualify. You just never know. Sometimes even if there is an income requirement, it so fucking convoluted it's confusing. I don't trust what they put out on the internet when it comes to that stuff. Yeah they sent me the tefra paperwork and I’ll apply when it comes. As far as school.... I don’t really know. They’d do another evaluation but no diagnostic testing. They wouldn’t pay for it either (I asked). Another evaluation might show that he’s no longer developmentally delayed socially and if that happens we lose our iep because you need two qualifying factors. SPD isn’t one sadly but adhd is. As his developmental delay in social development (I think that’s what it was)
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jedi
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Post by jedi on Oct 4, 2017 14:31:06 GMT -6
I feel confident that this pacer group can help considering two people (who don’t know each other) recommended them
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armpants
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Post by armpants on Oct 4, 2017 15:08:37 GMT -6
taketheshot you've been feeling off for a while. Should you maybe POAS?
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armpants
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Post by armpants on Oct 4, 2017 15:17:36 GMT -6
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armpants
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Post by armpants on Oct 4, 2017 15:18:05 GMT -6
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armpants
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Post by armpants on Oct 4, 2017 15:18:34 GMT -6
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layloo
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Post by layloo on Oct 4, 2017 15:19:19 GMT -6
I'm sorry jedi... you do so much to make sure I gets the best and I admire you for it. No advice, just hugs and wine And GL to YH!!!
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Post by momololo on Oct 4, 2017 15:24:04 GMT -6
Thanks but it’s looking iffy now. Tropical storm Nate is projected to go right where we would be and even if it’s not bad I’m not sure an 8 hour drive each way for little to no beach time is worth it. Still trying to decide and see what weather does in next 20 hours.
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armpants
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Post by armpants on Oct 4, 2017 15:27:09 GMT -6
momololo if Nate messes things up you could always come to Atlanta...
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armpants
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Post by armpants on Oct 4, 2017 15:30:28 GMT -6
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mrspiatt
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Post by mrspiatt on Oct 4, 2017 15:45:16 GMT -6
jedi- is there a resource center near you? There may be a waitlist, but they can likely do a full evaluation at no cost. I think we had to wait 6 months for DS, but then we ended up going through our insurance because it was only a $15 copay.
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mrspiatt
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Post by mrspiatt on Oct 4, 2017 15:46:56 GMT -6
Thanks armpants! I’m looking forward to just relaxing and not having to pack or unpack anything... 😂
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armpants
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Post by armpants on Oct 4, 2017 15:53:34 GMT -6
mrspiatt Dallas has a lot of activities as well. When my dad lived near there I use to live to go to the town of Grapevine. Lots of fun little shops and good wine. You could always get a bottle for after they baby is born!
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Post by momololo on Oct 4, 2017 16:12:48 GMT -6
armpants, we were talking about alternative adventures. My H is pushing for Gatlinburg or Chatanooga but I tossed out Atlanta too!
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armpants
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Post by armpants on Oct 4, 2017 16:20:26 GMT -6
Personally I'd pick Chattanooga over Gatlinburg. But of the three I think Atlanta has the most to do momololo. Plus some cool people! You might also consider Asheville. We love it there.
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Post by momololo on Oct 4, 2017 16:22:45 GMT -6
armpants, my H hasn't been to any of these places to he wants to go to all of them at some point. My sister is thinking of booking her wedding in Asheville! The last time I went was when I was a little kid so I'm excited to check it out again.
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armpants
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Post by armpants on Oct 4, 2017 16:33:21 GMT -6
We went to Gatlinburg earlier this year and I was not impressed. Super, super touristy. The aquarium was okay. It was so freaking crowed that truing to drive through downtown gave me terrible anxiety.
I love Chattanooga. The downtown area is easy to walk. The aquarium is great, the children's museum is also wonderful. I've heard the zoo is pretty good for the price as well. There's also the river gorge, which I someday want to do a river tour of.
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Post by redandblue on Oct 4, 2017 16:41:29 GMT -6
It is me! My world has been so busy I had no clue that survivor starts tonight! Lol! I will mention to DH. Maybe we watch it to celebrate or distract tonight from house stuff! On our way home now to meet with our agent to discuss the current offers. Fingers crossed we get it done tonight!
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