tgrimes
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Post by tgrimes on Dec 13, 2019 10:41:05 GMT -6
I'm probably overreacting...but still. Nah I'd be salty. Also she could just schedule a different time on Thursday, what's the difficulty? No idea. She’s either new, rude or both lol. We have an appt with infectious disease on Monday. I think that’s the only reason I got a call.
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starbuck
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Post by starbuck on Dec 13, 2019 11:00:06 GMT -6
tgrimes, that nurse was straight up bitchy.
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elle
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Post by elle on Dec 13, 2019 14:55:44 GMT -6
I'm probably overreacting...but still. Not at all.
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tgrimes
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Post by tgrimes on Dec 16, 2019 14:20:18 GMT -6
I walked M to school this morning, then got H ready and dropped him off for a bit. I finished wrapping all of the gifts and then picked H up for the dr. She said she reached out to the my immunologist and the head of immunology. The head got back to her and said based off his chart and the tests that had been run, it looks like transient hypogammaglobulinemia of infancy. It’s basically a very fancy way of saying his immune system isn’t built up to where it should be and it could take a couple years to get there.
She said she knew how frustrated I was and this many ear infections isn’t normal but coupled with the parotitis, she wants a few more tests run. Apparently my immunologist got back to her last Friday and said he’d work us in before the end of the year. I told her a nurse had phoned and offered me an appt for Jan 9 and she was not delightful, etc. she said sometimes scheduling calls to make appts and they’re not affiliated with any department so maybe that was the confusion. She called her nurse in the room and she confirmed it was my immunologist’s nurse. Lol.
Anyway, she’s going to contact immunology again and get us in before the end of the month. No blood work today since immunology will want tests run too and she didn’t want to poke him twice. We’ll see if they can actually get him in.
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tgrimes
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Post by tgrimes on Dec 16, 2019 14:21:18 GMT -6
The dr also said she wouldn’t recommend the prophylactic antibiotic for him because the viruses then get smart and grow more difficult strains. The usual antibiotics he would be prescribed for infections wouldn’t work & we’d be in the hospital to receive different antibiotics that are IV only.
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elle
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Post by elle on Dec 16, 2019 15:27:43 GMT -6
Oh tgrimes, that sounds like a rough diagnosis, although it's good to get some answers and I'm glad they're getting you I'm before the end of the month.
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elle
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Post by elle on Dec 16, 2019 15:31:22 GMT -6
As for me, that cold/congestion thing I had going on a while ago has now turned into a chesty cough, so that's not fun. The baby isn't coughing, but A is a little bit even though she never seemed to actually get sick. I'm just hoping that since the baby didn't come down with it hard that we're out of the woods in that regard. It makes me really thankful that I'm lucky enough to be able to breastfeed her, I think the antibodies are probably what's keeping her more or less healthy while I'm on the struggle bus.
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starbuck
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Post by starbuck on Dec 16, 2019 17:10:21 GMT -6
tgrimes I'm glad you have a dx and I'm glad it seems like this will all end and he will stabilize, albeit in the future. Light at the end of the tunnel and all that.
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starbuck
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Post by starbuck on Dec 16, 2019 17:10:33 GMT -6
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Cheshie6
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Post by Cheshie6 on Dec 17, 2019 19:29:32 GMT -6
tgrimes, I’m glad you have an answer! I’m sorry it’s not a quick fix. But I feel like answers are better than nothing! We had a snow day today! I’m glad it was both of us! L has been acting cuddly and off. Elevated temp but no fever! I feel like him at his current age and with pre-k has messed with my usual holiday routine! Normally, all gifts are out and on their way. Plus I have some tweens and they are hard. All got Bluetooth speakers that are waterproof and can clip onto their bags! I hope this is okay 🤷🏽♀️
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elle
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Post by elle on Dec 17, 2019 19:58:05 GMT -6
Feeling even worse tonight, witha fever of 100°. And of course we have family pictures scheduled tomorrow with a friend who is a photographer, so that's going to be extra fun. The glands in my neck are super swollen so I'm going to end up with 500 chins in these pictures. 😔
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tgrimes
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Post by tgrimes on Dec 17, 2019 20:20:09 GMT -6
Feeling even worse tonight, witha fever of 100°. And of course we have family pictures scheduled tomorrow with a friend who is a photographer, so that's going to be extra fun. The glands in my neck are super swollen so I'm going to end up with 500 chins in these pictures. 😔 Nooo! Do you think you should go to a clinic or something?
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elle
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Post by elle on Dec 17, 2019 21:11:27 GMT -6
Feeling even worse tonight, witha fever of 100°. And of course we have family pictures scheduled tomorrow with a friend who is a photographer, so that's going to be extra fun. The glands in my neck are super swollen so I'm going to end up with 500 chins in these pictures. 😔 Nooo! Do you think you should go to a clinic or something? If it remains in my chest I'll go in, I'm just trying to give my body a chance to kick it. What I really need is some sleep, but you know how likely a good night's sleep is for me right now, lolsob.
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elle
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Post by elle on Dec 17, 2019 21:12:13 GMT -6
And we rescheduled our pics for the 28th, which is for the best but I'm sort of sad we have to wait that long.
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tgrimes
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Post by tgrimes on Dec 18, 2019 9:30:33 GMT -6
I got an email from a nurse in immunology. After a bunch of back and forth, our appointment is Jan 16 but they're putting in lab orders so we can get it done before the end of the year.
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tgrimes
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Post by tgrimes on Dec 18, 2019 9:30:45 GMT -6
How are you feeling today elle?
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elle
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Post by elle on Dec 18, 2019 10:26:13 GMT -6
How are you feeling today elle? Still pretty crappy. I was feverish on and off through the night and my wrists and elbows are still aching, but M managed to sleep in a four hour stretches, so that was nice.
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tgrimes
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Post by tgrimes on Dec 18, 2019 10:43:31 GMT -6
How are you feeling today elle ? Still pretty crappy. I was feverish on and off through the night and my wrists and elbows are still aching, but M managed to sleep in a four hour stretches, so that was nice. I'm sorry you still feel shitty. Is YH home to help out?
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elle
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Post by elle on Dec 18, 2019 11:13:56 GMT -6
Still pretty crappy. I was feverish on and off through the night and my wrists and elbows are still aching, but M managed to sleep in a four hour stretches, so that was nice. I'm sorry you still feel shitty. Is YH home to help out? Yes, but with his lack of patience these days I don't know if I'm actually better off. 🙄😒😑
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tgrimes
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Post by tgrimes on Dec 18, 2019 12:19:33 GMT -6
I'm sorry you still feel shitty. Is YH home to help out? Yes, but with his lack of patience these days I don't know if I'm actually better off. 🙄😒😑 Lol. That's understandable and pretty much the norm at my house.
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Cheshie6
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Post by Cheshie6 on Dec 18, 2019 15:17:46 GMT -6
tgrimes, that works! Our allergist does that! Puts in labs so we can go anytime and they'll be ready for his next appointment.
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tgrimes
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Post by tgrimes on Dec 18, 2019 15:36:54 GMT -6
I just received a very carefully worded email from the immunologist. Basically he doesn't think any additional testing is warranted at this time and the testing to date has been appropriate. Oh, okay fucker.
A few minutes later I received another email saying he reviewed my messages with the nurse and put in the orders.
Looks like I'll be cancelling my appointment with him after these labs come back and find a new immunologist.
Jackass.
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tgrimes
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Post by tgrimes on Dec 18, 2019 15:38:24 GMT -6
tgrimes , that works! Our allergist does that! Puts in labs so we can go anytime and they'll be ready for his next appointment. The infectious disease doctor told me she didn't think the immunologist would order labs without seeing him first. I had to push to get it done.
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danib
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Post by danib on Dec 18, 2019 16:38:14 GMT -6
Christ tgrimes what a tangle. I'd be finding someone new as well.
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tgrimes
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Post by tgrimes on Dec 21, 2019 17:02:54 GMT -6
Nailed it
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waitwhat
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Post by waitwhat on Dec 23, 2019 11:45:38 GMT -6
What are everyone’s Christmas plans this week?
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tgrimes
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Post by tgrimes on Dec 23, 2019 12:10:37 GMT -6
What are everyone’s Christmas plans this week? I'm at work and my in laws are watching the kids today. Then I'm off the rest of the week since daycare is closed. I'd really like to purge some toys this week. Preferably before Wednesday, but I doubt that will happen.
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tgrimes
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Post by tgrimes on Dec 23, 2019 13:17:39 GMT -6
I got carded at the liquor store. I told her she was my new BFF.
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waitwhat
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Post by waitwhat on Dec 23, 2019 14:14:55 GMT -6
B is back to normal but now J has a cough that has been keeping him up at night. He couldn’t even nap today because he kept coughing.
Tomorrow night we do H’s moms side of the family for Christmas Eve. Then we do my family on Christmas Day. We are hosting a brunch this year. Then Thursday we will head up to the lake to do Christmas with my FIL. It’s going to be a long couple of days.
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tgrimes
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Post by tgrimes on Dec 23, 2019 14:22:07 GMT -6
waitwhat Poor J. Coughing is the fucking worst.
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