waitwhat
Sapphire
Posts: 4,801 Likes: 15,856
|
Post by waitwhat on Oct 16, 2019 15:16:20 GMT -6
wow. I have so many questions.
|
|
tgrimes
Diamond
Posts: 27,518 Likes: 137,800
|
Post by tgrimes on Oct 16, 2019 15:20:14 GMT -6
I love that the oldest escaped and the first thing he did was go to a pub and order 5 beers.
|
|
|
Post by goldenlove on Oct 17, 2019 5:13:43 GMT -6
I love that the oldest escaped and the first thing he did was go to a pub and order 5 beers. Yea that was almost weirder than the original story lol. He didn't ask for help right away?
|
|
tgrimes
Diamond
Posts: 27,518 Likes: 137,800
|
Post by tgrimes on Oct 17, 2019 7:35:21 GMT -6
|
|
waitwhat
Sapphire
Posts: 4,801 Likes: 15,856
|
Post by waitwhat on Oct 17, 2019 8:07:52 GMT -6
J was up at 2am and had to throw up. Then I heard B at 3am and I went into his room and he had two wet spots on his sheets. He ran to the bathroom and dry heaved for a bit but nothing really came up. I’m so over all this throwing up.
FFTC: I still sent B to school. If he hadn’t missed all last week and 3 speech sessions I might have kept him home. He was acting fine all morning like nothing had happened. However, when we got to his classroom he was fighting back tears and didn’t want to go in. But I talked him into it and in he went. Cue mom guilt.
|
|
|
Post by cookswithwine on Oct 17, 2019 8:22:05 GMT -6
TL:DR - O threw up 3x last night and had diarrhea. We had spaghetti for dinner.... maybe tomato sauce is a trigger food? Coincidence? I’m so frusterated. Last night was like my nightmare scenario. H is still out of town. So the night events went like this at 4:30am - D wakes up nursing on 1 side O calls out to me, put D down - he has diarrhea and throws up while on the toilet Get O cleaned up and back in bed Nurse D on the other side; give Tylenol for fever from shots O throws up in bed, put D down Clean up O, strip bed and put O back in bed Settle D and try and get him to sleep O throws up in his bed again; put D down still not asleep Clean up O, strip bed - no more sheets or mattress protectors - find a sheet and make it work, put O back to bed D fell asleep, O falls asleep, I can’t sleep now
|
|
waitwhat
Sapphire
Posts: 4,801 Likes: 15,856
|
Post by waitwhat on Oct 17, 2019 8:30:22 GMT -6
goodness cookswithwine. I hope you can find time for a nap today.
|
|
|
Post by cookswithwine on Oct 17, 2019 8:54:15 GMT -6
goodness cookswithwine. I hope you can find time for a nap today. You too! I’ve had enough vomit for a life time...
|
|
tgrimes
Diamond
Posts: 27,518 Likes: 137,800
|
Post by tgrimes on Oct 17, 2019 8:56:49 GMT -6
TL:DR - O threw up 3x last night and had diarrhea. We had spaghetti for dinner.... maybe tomato sauce is a trigger food? Coincidence? I’m so frusterated. Last night was like my nightmare scenario. H is still out of town. So the night events went like this at 4:30am - D wakes up nursing on 1 side O calls out to me, put D down - he has diarrhea and throws up while on the toilet Get O cleaned up and back in bed Nurse D on the other side; give Tylenol for fever from shots O throws up in bed, put D down Clean up O, strip bed and put O back in bed Settle D and try and get him to sleep O throws up in his bed again; put D down still not asleep Clean up O, strip bed - no more sheets or mattress protectors - find a sheet and make it work, put O back to bed D fell asleep, O falls asleep, I can’t sleep now FUCK!!!! I'm so sorry. Tomatoes are acidic so it could be causing reflux. Last time he had eaten pizza, right? Are you still giving miralax? If so, how much daily? I'm wondering if you're pedi could feel around on his stomach to see if he's still backed up. I'd also ask for zofran until you have your GI appt. They make liquid and tablets. The tablet you stick under their tongue and it's super small. M did much better with those than the liquid. The liquid she'd just vomit up a few minutes later. TMI alert - What does his vomit look like? From my extensive knowledge in the GI field (lol) if he still has an obstruction, it would cause diarrhea and the vomiting. But if the pedi could tell you that he isn't constipated/backed up, then it's obviously not caused by that. It's also possible that the 2 aren't related, which can obviously make it more complicated. I'm sure you are, but just in case, start keeping track of his food, vomit and diarrhea. That way the GI already has that info at the appt.
|
|
danib
Sapphire
Posts: 4,101 Likes: 12,682
|
Post by danib on Oct 17, 2019 9:10:05 GMT -6
cookswithwine that's so horrible. Hopefully everyone feels better soon.
|
|
|
Post by cookswithwine on Oct 17, 2019 9:22:33 GMT -6
tgrimesSat night was pizza - vomit was bile Last night vomit was food Miralax 1x a day - I reduced it after Sunday (he had diarrhea 7x that day) thinking the double dose might be too strong for him. I think normal BM Monday-Wed. (He’s at daycare so it’s hard to know for sure but his teachers didn’t put anything in his report.) I put a call into the ped again since our GI appt isn’t for another month.
|
|
tgrimes
Diamond
Posts: 27,518 Likes: 137,800
|
Post by tgrimes on Oct 17, 2019 9:41:35 GMT -6
cookswithwine I'm just trying to offer some reassurance due to what I've been through for over 2 years with M, so if I'm being annoying, please tell me. Our first GI was insistent that M's vomiting was caused by constipation. We had done x-rays, an upper GI, multiple clean outs, etc. I had to keep track of her daily fiber intake for months, which was not delightful. After over a year of this, he retired and said the pedi could take it from here but also gave me some other GI phone#s if I wanted to go that route. Then she started vomiting again but I had been keeping track of her poop and knew she was not backed up. The pedi was talking abdominal migraines and cyclic vomiting syndrome. I got an appt 3+ months out for a GI. Then more vomiting and the frequency was increasing. She found out about the fast track program at the children's hospital (which they are affiliated with so you'd think she'd already know about it but whatever). This GI runs a bunch of poop tests & blood work and is pretty positive it's cyclic vomiting syndrome, especially when all of the labs come back as normal. Then I have the scheduled GI appt. She does agree it sounds similar to cyclic vomiting syndrome however the majority of recurrent vomiting in children is due to reflux. Not one of the other doctors ever brought up reflux. They had asked me questions if I had seen her have issues swallowing etc, but that only rules out reflux while eating, if that makes sense which is what the upper GI confirmed as well. I had been spiraling with the possibility of cyclic vomiting syndrome for several months when I didn't need to be. And I'm highly annoyed the first GI never even considered it. Anyway, if you want to test out this theory before your GI appt. Give him spaghetti or something with tomato sauce again at night, preferably over the weekend when your husband is home and after you get a prescription for zofran, and see what happens. I could never narrow down triggering foods for M. Sometimes she'd eat tomato sauce & vomit and sometimes she wouldn't. Sometimes it'd be french fries and sometimes it wouldn't. Several times she'd eaten ridiculously bland food and still got sick. Kids, man.
|
|
|
Post by cookswithwine on Oct 17, 2019 10:08:54 GMT -6
tgrimes not annoying at all. I like the ideas you give me and it’s comforting to know someone else has went through this too. ETA - what was the final cure for M? I know you said she’s on miralax but does she take something like Zantac too?
|
|
tgrimes
Diamond
Posts: 27,518 Likes: 137,800
|
Post by tgrimes on Oct 17, 2019 10:22:18 GMT -6
tgrimes not annoying at all. I like the ideas you give me and it’s comforting to know someone else has went through this too. ETA - what was the final cure for M? I know you said she’s on miralax but does she take something like Zantac too? Omeprazole. The come in 20mg dissolvable tablets so we started with 1 a day. Since 95% of her vomiting is MOTN, I give it to her at dinner. Then we cut it down to 1/2 a tablet a day. Withine 30 days she had 2 more episodes so we went back up to the full tablet for a few months. Then I lowered it again to 1/2 tablet daily and now we're on over a month of 1/2 tablet every other day. We were supposed to have a follow up with the GI in November but they just cancelled our appt because she won't be in the office. It's not a huge deal, but I'm annoyed no one contacted me (I received an email notification through my chart that it had been cancelled). I could really just message her through mychart to ask what the next interval would be. If she's not off the omeprazole completely by February, we have to do an endoscopy. I'm assuming if I know that certain food could trigger her, I could offer her the meds on those nights, but we just can't be on it continuously.
|
|
|
Post by goldenlove on Oct 17, 2019 11:54:05 GMT -6
Ooph I'm sorry for the rough night cookswithwine! I hope you can figure out what's going on with O. tgrimes was M a refluxy baby?
|
|
tgrimes
Diamond
Posts: 27,518 Likes: 137,800
|
Post by tgrimes on Oct 17, 2019 12:04:19 GMT -6
Ooph I'm sorry for the rough night cookswithwine ! I hope you can figure out what's going on with O. tgrimes was M a refluxy baby? No. She would occasionally vomit for no reason at all but that started around 9 months. I'd say every couple of months she might have one episode of unexplained vomit, but what kid doesn't have some of those, you know? Right around 3 she started it more frequently. She stayed at my in laws when I delivered H. My MIL had to keep her home because she vomited after she woke up. It wasn't until she was having the episodes where she'd vomit every 5-10 min for hours that I thought there was a problem. H was on reflux meds as a baby though. He has had his share of vomiting but I've always chalked it up to his drainage/sicknesses. Maybe I should start paying better attention.
|
|
|
Post by goldenlove on Oct 17, 2019 12:16:00 GMT -6
K is spitting up a lot and refluxy. But they did a pH probe study before the g-tube surgery and it showed that her reflux wasn't severe enough to need a nissen. I dunno what this is with her. Zantac isn't helping anymore so they're switching to Prilosec to see if that works. I asked the doctors if she was simply being overfed because they tried to weight adjust her feeds by adding 2 mLs and she pretty much spits it all out at the end of every feed. That's the bad thing about tube feeding. Usually you get cues that they're done and stop feeding but she has no choice here.
|
|
|
Post by goldenlove on Oct 17, 2019 12:17:51 GMT -6
So C has decided that he wants to be a witch for Halloween. He has been talking about a hat and broom for a while now. I found a witch hat in my Halloween bucket and he was SO excited to wear it and asking where his broom is lol.
|
|
tgrimes
Diamond
Posts: 27,518 Likes: 137,800
|
Post by tgrimes on Oct 17, 2019 12:21:40 GMT -6
K is spitting up a lot and refluxy. But they did a pH probe study before the g-tube surgery and it showed that her reflux wasn't severe enough to need a nissen. I dunno what this is with her. Zantac isn't helping anymore so they're switching to Prilosec to see if that works. I asked the doctors if she was simply being overfed because they tried to weight adjust her feeds by adding 2 mLs and she pretty much spits it all out at the end of every feed. That's the bad thing about tube feeding. Usually you get cues that they're done and stop feeding but she has no choice here. Hopefully, the prilosec helps. If not, maybe it is too much in the feeds. Did they explain the difference between zantac & prilosec to you? I didn't know they worked differently until M started reflux meds. Omeprazole is the generic form of prilosec and that's what M takes.
|
|
tgrimes
Diamond
Posts: 27,518 Likes: 137,800
|
Post by tgrimes on Oct 17, 2019 12:27:04 GMT -6
goldenlove Also, assuming they send you home with a prescription for reflux meds, I'd find out from your pharmacy if they keep it in stock or if they could keep it in stock for you. With H, I was driving all around Houston trying to find someone that carried it.
|
|
|
Post by cookswithwine on Oct 17, 2019 12:28:46 GMT -6
D has reflux and it’s getting worse. The ped asked if I wanted to start Zantac and I said to hold off for now. But the more I pay attention the more I see it. It doesn’t seem to be causing him any pain though... he was born w Laryngomalacia which means his airway is floppier than normal. He makes a whistling sound when he breathes in and reflux is common w that condition.
|
|
|
Post by goldenlove on Oct 17, 2019 12:52:56 GMT -6
goldenlove Also, assuming they send you home with a prescription for reflux meds, I'd find out from your pharmacy if they keep it in stock or if they could keep it in stock for you. With H, I was driving all around Houston trying to find someone that carried it. We might end up doing a mail order if we will be on it long term. Ugh there's going to be so much to do once we leave here. I have not looked up the difference yet. I'll do that now.
|
|
|
Post by goldenlove on Oct 17, 2019 12:58:48 GMT -6
D has reflux and it’s getting worse. The ped asked if I wanted to start Zantac and I said to hold off for now. But the more I pay attention the more I see it. It doesn’t seem to be causing him any pain though... he was born w Laryngomalacia which means his airway is floppier than normal. He makes a whistling sound when he breathes in and reflux is common w that condition. H has bad reflux and there have been many times that he was up MOTN puking from it. I would definitely consider putting him on something if it doesn't calm down. Maybe before triggery meals at least.
|
|
|
Post by cookswithwine on Oct 17, 2019 13:33:07 GMT -6
Here’s D’s 2 month pic to make up for all the poop and vomit talk:*poof*
|
|
tgrimes
Diamond
Posts: 27,518 Likes: 137,800
|
Post by tgrimes on Oct 17, 2019 14:07:28 GMT -6
cookswithwine Well he's adorable. I can't believe its already been 2 months!
|
|
|
Post by goldenlove on Oct 17, 2019 14:36:49 GMT -6
|
|
|
Post by sarahwithanh on Oct 17, 2019 21:38:02 GMT -6
D has reflux and it’s getting worse. The ped asked if I wanted to start Zantac and I said to hold off for now. But the more I pay attention the more I see it. It doesn’t seem to be causing him any pain though... he was born w Laryngomalacia which means his airway is floppier than normal. He makes a whistling sound when he breathes in and reflux is common w that condition. M had laryngolmalcia. It was what his first two surgeries were for. Reflux and LM are frenemies so whatever you can do to keep it from getting worse. He is absolutely adorable. Congratulations!!!
|
|
|
Post by goldenlove on Oct 18, 2019 4:08:34 GMT -6
D has reflux and it’s getting worse. The ped asked if I wanted to start Zantac and I said to hold off for now. But the more I pay attention the more I see it. It doesn’t seem to be causing him any pain though... he was born w Laryngomalacia which means his airway is floppier than normal. He makes a whistling sound when he breathes in and reflux is common w that condition. H has bad reflux and there have been many times that he was up MOTN puking from it. I would definitely consider putting him on something if it doesn't calm down. Maybe before triggery meals at least. Quoting myself because I missed that you were talking about D and not O so my comment doesn't make sense lol.
|
|
|
Post by cookswithwine on Oct 18, 2019 6:06:08 GMT -6
D has reflux and it’s getting worse. The ped asked if I wanted to start Zantac and I said to hold off for now. But the more I pay attention the more I see it. It doesn’t seem to be causing him any pain though... he was born w Laryngomalacia which means his airway is floppier than normal. He makes a whistling sound when he breathes in and reflux is common w that condition. M had laryngolmalcia. It was what his first two surgeries were for. Reflux and LM are frenemies so whatever you can do to keep it from getting worse. He is absolutely adorable. Congratulations!!! Thank you! Was his severe to require surgeries? The ped keeps telling me that he will grow out of it.
|
|
waitwhat
Sapphire
Posts: 4,801 Likes: 15,856
|
Post by waitwhat on Oct 18, 2019 6:15:14 GMT -6
Last night was fun. J woke up saying he had pooped and when I checked his diaper (he wears one at night especially when he’s been having diarrhea) sure enough he was right. I was getting stuff ready to change him when he started throwing up all over his bed. And then on the white carpet in the hallway on the way to the bathroom. So I took care of all that, threw his bedding in the wash, brought him into the spare room for the 4th night in a row this week and he puked all over those sheets. So changed those and threw those in the wash, remade the bed. We both fall asleep. He wakes me up around 3ish to say he has to poop. So we go to the bathroom and you can imagine the rest. Then I hear B up at 5:30 saying he doesn’t feel good and he goes to he bathroom but nothing happens.
I’m keeping them both home and bringing them to walk in hours at the pedi. Mainly for J. But since I have B with me I’ll ask about him but I’m really over all this middle of the night puking. Our anniversary is this weekend and I wanted to go out but that’s not happening now.
|
|